May 13, 2010
Dr. Freedman, if you take him at his word, expects a CCSVI study (probably to report before the end of the year), that will disprove what Dr. Zamboni is saying. He will try. but I have no doubt that under the scrutiny of his peers (plus *us* rabble), he will fail. Then maybe television and newspapers and magazines might stop quoting him, and giving his opinions an airing on radio and TV. You people that insult him and call him names, if you don't criticize any of his published work, what have you got, besides hot air? Attacks only make people very defensive. That defensive stance ends up being very counter-productive, no matter what he might have said. It ain't worth the paper it's printed on. Has his appearance on CTV or CBC radio been peer-reviewed?
I'm not saying no one should express displeasure. Sure they should. But there are enforcers on this forum. They could perhaps filter ad-hominem, slippery slope and other fallibilities, plus angry name-calling, by restricting them to one topic. Not this one, but a more general one.
Anyway, if you are very confident, Paulo Z. should be easily vindicated by real science, which now cannot rest until CCSVI/'MS' is proven by many peers. Some would argue that it already has been.
However, following Dr. Freedman's logic, we must prove there is no doubt. Well, after a while, that gets too expensive. I think the best thing Paulo Zamboni could do is to quantify and clarify the content of his teachings in diagnosis and testing for CCSVI. Dr. MacDonald claims that because he himself went to Italy and learned from Zamboni, the difference between how he did it before and after, is like day and night.
It cannot be rocket science, but might be better than the job done by a person who is forbidden, by their professional organization, and by lawyers, to do any more testing of CCSVI, and would rather be home watching a game. So quantify it, describe its diagnosis and treatment in a formal procedural description, and let that be the gold standard for diagnosis and treatment of all CCSVI, whether it has an association with MS or not.
The data are likely to be much more consistent between testers. He has to make this disease process's existence as unassailable as auto-immunity was. That means, unfortunately, he'll have to give all his trade secrets (if any) away, at least as far as CCSVI is concerned. It would allow others to know how to diagnose and treat without going to Ferrara. Same with any modifications to Doppler machines, etcetera. If this stuff is to become science-standard knowledge, it must all be transparent. If it requires that he or Dr. MacDonald or someone write a book, well somebody's gotta do it. Maybe some enterprising student of his should do it before the opponents of this treatment do.
I think they exist, that they are very powerful, and blatant in their opposition. "If all patients are given the therapy, no one will go in a trial." This statement was made as testimony before a Parliamentary committee, by an 'MS' Society spokesman. Well that in itself can be reworded to say that (however unfortunate it may be for the industrial base around CCSVI/'MS') these people would all be, for other intents and purposes, CURED! While that is obviously not true (it may be a while before all vein haemodynamics, iron deposits, scarring and autoimmunity are fully elucidated), it sounds good to *me*.
Lets all get treated, and deprive science of one of it's favorite mysteries. We'll be like the dinosaurs; no one will ever know how they died. Nor will it be very important for average people to know, so if we find new evidence, we can always change our minds any time. In the end, it will probably be funded indefinitely. Just not by bike rides or walks.
"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'MS' is over - if you want it
Patients sans/without patience
I am not a doctor. Do not take anything I say as medical advice.