quarkrad wrote:Has any body experience of the neuro reaction to treatment? My wife is under a great neuro at Queen's Sq and we have yet to discuss (need to do it soon) but we do not know what the reaction will be. The medical establishment in he UK appears negative so perhaps it will not go down well - we would rather support. Also - I guess one would stop dmd's after liberation. Any experience on both points?
note. Booked to have a scan in Aug.
Were UK based and both neuros we have dealt with have been very scathing about this new treatment.
As this seems to be the only hope on the horizon for MS patients so far-and not perfect results either, meaning it seems to help some and not help others that much in an obvious way-we will be having the treatment.
Not entirely convinced that we will get the best treatment from these guys because they are new and inevitably there will be some teething problems when diagnosing etc.
We don't fancy the idea of waiting but we have decided for the Poland option as we feel we will be in the hands of a more experienced team and will feel more confident about any outcome from them.
Going to give these guys at EH a year or so, and if there is positive news from patients who have been, then of we are still waiting for Poland we might go for it.
Hope that helps!