MS Diagnosis Type versus Improvements

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

MS Diagnosis Type versus Improvements

Postby fiddler » Fri May 14, 2010 6:20 am

Folks, someone asked a good question on my blog today: what is the correlation between diagnosis of MS type (RRMS, SPMS, PPMS) and types of improvements (if any) in liberated patients. I'll start this:

Fiddler: Diagnosed SPMS in 2004
    One week after liberation: left arm a bit stronger, otherwise no changes that couldn't be confused with normal variation in symptoms. Wife and friends suggest that I am also more "bright-eyed and alert.

    Two weeks after liberation: No change from above - except maybe a little less fatigue.

I'll try to remember to update this for myself every week.

Also, would contributors please try to stick to the format I suggest so that people can skim through the postings easily.
Last edited by fiddler on Fri May 14, 2010 9:28 am, edited 5 times in total.
Dx SPMS in 2004.  Liberated 29/04/2010.
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Postby crocky » Fri May 14, 2010 8:52 am

Hi Ted
That's a question I am very interested in knowing the answer to.
I was liberated in Katowice Poland 8 April, have had ms for 10 years and think that I was changing from rrms to spms.
I had one stent in my left jugular and angio on the right.
I am a little disappointed with my results so far - fatigue which was my number 1 problem is still very much with me.
On a more positive note the nausea and flu feeling which were always with me seem to have gone.
My walking is much the same as before.
Of course I am hoping for more improvements in time and will update all in here as and when I feel any.
All the best - Suzanne
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