I made a cold call to my local University Hospital and struck gold. Within one pass-offs on the phone line I was speaking to the Chief of Radiology, an Intervention Radiologist to boot. I had so much to say about CCSVI that it began to overwhelm me. I was relaxed and relieved when his first statement was a warm, heartfelt “how can I help you”. Long story short we have a sit down planned for mid June. He has responded to my emails and thinks the hypothesis is “Intriguing”. My question to the group is how I keep the ball rolling? Has anyone had experience with this situation? My goal is to involve them, The University, in the CCSVI world and possibly get a local trial site started. I really want to be Liberated myself but I also want them to start a local trial and begin treatments for any MSer's.
Sounds exactly like our experience, word for word. My wife had the procedure done 5 weeks ago, no problems, and the IR was interested and very down to earth. He will be seeing more people, and I believe he planning to set up some kind of study. However, the same hospital's Neuro department is NOT interested in CCSVI at this point, so we are keeping a low profile.