montel, A funacello, Terrie Garr

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby lumpc1 » Sun May 16, 2010 11:41 am

eat shit lyon, or should i say colin. keep your mouth shut, it has been proved stupid, 47 countries. you think everyone is a dumb ass except for the big pharma America FU, circulation problems should be addressed any other opinion is linked to other interests so shut the f up.
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Postby Lyon » Sun May 16, 2010 12:14 pm

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montel, a. funacello, terri garr

Postby blossom » Sun May 16, 2010 2:53 pm

these people like montel, oprah etc. how would they be putting their reputation on the line? they would hardly be telling everyone to run out and get their veins opened up. but to have this news not even made available to the public or discussed is just plain wrong. how many times on tv we hear about treatments being investigated or there may be hope etc. ot scientist and researchers are looking into a possible cure but not a peep about this especially with the results that have come about. montel had the chiropractor on his show doing the atlas adjustment for his ms and this deserves less attention? benefit of the doubt? i may be radical or whatever but there is more to this.
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Postby Lyon » Sun May 16, 2010 3:44 pm

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montel, a. funacello, terri garr

Postby blossom » Sun May 16, 2010 6:32 pm

well, each to his own this we are allowed and we can all agree to disagree. for whatever reasons we all feel and have our opinions. but for none of these people to even send a short reply even saying something like i would like to check this out or not interested just adds fuel to my thoughts. given that there is a foundation that montel started and he stood on tv swearing that every $ collected would go for ms research. i would surely think ccsvi would at least warrant a look from them. the silence of the media, montel and all the rest is just adding to the thoughts i have and others. one would would think that with all the info. and e-mails sent to his ms foundation and him that they would at least be curious. seems the ms society is not alone in trying to keep the legal drug lords happy. hope all our days are better tomorrow.
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Re: montel, A funacello, Terrie Garr

Postby mmcc » Sun May 16, 2010 7:08 pm

lumpc1 wrote:Anybody thought of getting them on board? it would be a boost to the movement in the USA someone with more energy and know how than me?
As I understand it, Annette Funicello is unable to even care for herself, much less serve as a spokesperson.

As for the other two --- I got blasted when I first was furious with their nonsense and them using their celebrity to promulgate inaccurate and misleading information. I no longer bother - but having them as spokespeople would probably not help - who knows what they would say or do????

On the subject of PR, IMHO calling the procedure "liberation" makes it sound like a nutty, off the wall, snake oil treatment. Using the proper medical terminology gives the procedure much more "weight."

I'd rather have some doctors and scientists as spokespeople and I doubt many of them would call it "liberation."
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Re: montel, a. funacello, terri garr

Postby Lyon » Sun May 16, 2010 7:19 pm

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montel, a. funacello, terri garr

Postby blossom » Sun May 16, 2010 7:58 pm

annette funacello is very sick you are right and everyone loves her and always will. i agree to disagree and i do disagree that the liberation treatment name makes this sound any less important or like snake oil. dr.zambonni and the rest of the doctors that are on board are brilliant, well respected careing doctors. should the name of the treatment be something that most people can't even pronounce let alone interept what it means. ccsvi has a nice long medically correct explanation and they are still trying to play this down. i must be really simple because when i hear liberate i think freedom not snake oil. when i hear some of the reasons the ms society and a lot of these so called top notch neuro.'s comments i picture them holding and hugging their pocketbooks and putting out comments that makes them look like they are talking through their ass because their brain knows better. i am just a plain ordinary person but i know my body, i know my pain and i have been to so called top dogs in the med. field. begged them to check out my circulation. 18 yrs. ago at the cleveland clinic i had requested they check my circulatory system so what did this so called specialist ask me--he asked me and what med. school did i go to think i had a circulatory problem. i told him my body-his check up was next to worthless and that continued until now and these dr.'s that have the integrity to explore the LIBERATION TREATMENT KNOW IT'S NOT SNAKE OIL and so do the others. that is basically what scares the hell out of them.
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Postby lumpc1 » Mon May 17, 2010 9:23 am

I said Shut it lyon. you don't have Ms am 25 years In i can barley wash myself asshole, i can not walk f'er, so like I said you know shit. by the way you should meet up with someone who like me 3 year ago would have took you out. that is my last word on this matter out of respect for others on this board that cut through to me. and do read hightower books to get a real perspective what is going on in our country, and what we can do to take it back. thank you cheer for calming me.
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Postby Lyon » Mon May 17, 2010 12:52 pm

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Oprah, Montel etc.

Postby annie66 » Mon May 17, 2010 1:58 pm

Hello,

Just thought I would add my 2 cents here. I wrote a book a few years ago about my friend with MS. He has had it for 23 years now. He has RRMS and kept it at bay by exercising, and running. In the beginning he was bed ridden when he had his first attack unable to bath himself, or eat by him self, or take care of anything. Totally lost his dignity. He was also close to 285 pounds, 6'2 at that point.
Once he was back to walking, (while dragging his leg) he decided to try and start to run. That lead him to conditioning himself and losing close to 100lbs.
that seemed to work for him, he has never taken any medication that I am aware of. As of now, he has run 5 marathons.
Some of you may know him, a couple of years ago, he ran and cycled across Canada on a ten month trek to raise awareness for MS.It was my job to run the campaign, get media, tv, newspapers, arrange him running into city halls, police escorts etc. ...
What does all this have to do with anything you might ask???

I tried to get him onto Oprah,. and Montel. I had a connection to the previous executive producer of the oprah show, the one who makes all the decisions. At that time she was actually the producer of the Montel show.
The fact that we were from Canada did not help we figure, because we got know where. They did get a copy of my book, but felt his story was not inspirational enough. ....
I was blown away..but never the less, we did not get any acknowledgment for what he did, and all we wanted to do was raise awareness for MS, and give people hope to say, hey, if Robert can get into shape, there is hope that you can too, or at lease live a more positive life.
we were not worried about selling his book, because after he did his tour, the book was distributed in ten countries because we had support from Italy.

My whooole point here is, even though he did something really amazing, running and cycling close to 10,000 km, we got no real help from Oprah, Montel or Terri Garr,
Infact before the tour, we had the opportunity to meet her,(terri Garr) she took one look at Robert and told him to his face he did not have MS, he looked too healthy.
She asked him if he was taking medication and he said, no. Her response........Oh you better get on it quick....or else you'll get sick....that was 2 years before he went across Canada...so four years ago now.
By the way, Terri at that time was being sponsored by Copaxon to speak on behalf of that company, because she was taking the meds....Its all about money.
Just so you all know, I am aware everyone has different degrees of MS, i saw people right across Canada suffering from MS, some were confined to beds, wheelchairs etc...so i know Robert is a very special individual with MS, I feel he is chosen to help people, and for the record. ....

We head to Poland on Sunday, because he is being tested for CCSVI. IF he needs treatment, which I feel he does, he will then take on the role of speaking for those who can't. We will do something just as big as our last tour, to get the word out....
Anyway, that's all,
I don't personally have MS, but It is definitely in my life!! There are lots of people out here, who dont' have MS, who are ready to fight for those who do.

We are still raising awareness for this disease....you never really stop once you start !! For anyone who is interested, click on the link here, you can see clips from the tour across Canada, where Robert ran and cycled....even when he couldn't feel his legs or hands.
http://www.youtube.com/user/mstour1
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Postby annie66 » Mon May 17, 2010 2:25 pm

lumpc1 wrote:I think the plain truth is this the pharma owns the USA, all our reps have taken big money from them on both sides. the Republicans are the reps of the corp's, Bush/Chaney & co. used 9/11 to cinch it, read Jim Hightower to get the real perspective on this. The best thing about our country is the people, once they get the truth, which is hard to come by these days things get done. the point being Oprah, Dr. Oz, and probably the rest of the people that could influence this are fooled by the information trickle. the young kids coming up are going to get it and it will be ugly. it does not have to be our system does work if we can keep the big money out of it, almost impossible. my life is about over so?



I agree about Big Pharma, I just want to share one more thing, as I did just post a long winded message.

During the tour across Canada, at a society for Multiple Sclerosis (wont' mention the name....in a town in Western Canada ( I won't say which city) there was a comment made to Robert about our tour....He had mentioned we were working hard to try to raise awareness and to find a cure for MS....

This was the response from the person working for that society.
" Well, if we were to find a cure for MS, then we would all be out of jobs now wouldn't we ! "



After we picked our selves up off the floor from that comment, We then had an interview with a local paper. Robert made the mistake of quoting that Rep, and what was said....then to our surprise we were getting phone calls from the head people at that society... basically telling us to keep quite and keep our opinions to ourselves. They wanted their name removed from any of our promotional material.....and WE were trying to raise money for them....funny aeh. ...

they then proceeded to discredit our tour....and even went as far as contacting local media in Toronto telling them not to support us.

Luckily the media, had enough sense to come out to our event....and CTV,Global, City, CHIN, etc all supported us right across Canada. I guess depending on what the news event is, determines how much coverage it will get. Nobody really had any money to lose by us doing a tour...however, there is plenty of money to be lost if the Liberation Treatment catches on...and that is why I feel, people like Oprah, who influence millions , will not be allowed to do a show any time soon on CCSVI


thanks,

Suzanne
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Postby Trish317 » Mon May 17, 2010 3:49 pm

Does anyone remember when Oprah got sued by the cattle industry for comments she made about mad cow disease? Ever since then, she's been very careful to keep many of her personal thoughts to herself. I doubt she now wants to take on the pharmaceutical industry.
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Postby blossom » Mon May 17, 2010 3:51 pm

hi annie66, that is the neatist story. thanks for telling it. the best both of you.
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Postby annie66 » Mon May 17, 2010 5:33 pm

thanks Blossom,

that adventure took two years of my life...and his, we left behind families, jobs, homes etc...lol...it was quite a ride. i would love to do something again, once he is done with his trip to Poland, he would be an excellent person to promote CCSVI, especially since our tour was known literally world wide, thanks to Media. People might recognize his face..

take care

Suzanne
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