blossom wrote:i have tried talking to both neuro. and vasc. dr.'s. doing what you just said-forget i have ms -and pointed out certain health issues that under other circumstances i feel they would consider blood flow problems. closest i got so far was my pcp said he would order a doppler for the arteries but not the veins. so-the beat goes on. try try again i guess.
That is a good point. All the vascular dr.'s seem to look at arteries, not the whole circuit, so blood flow problems are considered to be arterial, not venous. after all, veins are flacid, expand, and develop collaterals if there is a problem under most circumstances, I guess. However, circulation problems in the lower extremities are largely veinous and lead to ulcers and lesions that are very reminescent of MS plaques.
I am not a doctor, but here is something you might try. Bite the bullet with the vascular dr., bring up CCSVI, say that you think you may have that problem and that you think it may be causing your vascular symptoms. One reason you think you may have that problem is that you have MS and careful, scientific studies have shown that MS is signficantly correlated with having CCSVI. Fixing the CCSVI may fix your vascular symptoms. If it also helps with some of the MS sympotoms, so much the better, but you are not counting on that and that is not why you want the CCSVI treated,. So far, as you are well aware, there is no scientific evidence that fixing CCSVI imporoves MS.
Don't even involve the neuro. Remember, you are not trying to get the MS treated, just the vascular symptoms. The only relevance the MS has is that MS is strongly coirrelated with having the vascular problem CCSVI.
Let me know if you have any luck.