Vhoenecke wrote:I probably will be a broken record on this subject but go where they know what they are doing. This negative is probably very positive.
Lyon wrote:Just to make sure, you're talking about the test where they run the catheter into the vein in the groin?Denon wrote: I just wanted to pass on to everyone that my wife recently had a Catheter Venogram procedure by an IR (does not want to give out name). I believe she was his 3rd MS patient that he performed a venogram on.
ndwannabe wrote:Denon, what country are you in?
If USA, those guys seem to have their act together http://www.communitycare.com/Practices/ ... /CCSVI.asp
Just today I had a call from one of their doctors and the e-mail.
Denon wrote: My wife had been diagnosed with MS 5 years ago. She has some minor urgency issues while sleeping and minor tingling in her feet and hands. No brain fog, nor fatigue.
Lyon wrote:Thanks for the response. I'm surprised. That's considered the "Gold Standard" of tests.Denon wrote: Yes, the invasive catheter venogram.
Curiosity and nothing more, did your wife have a hard time getting diagnosed or have neuros questioned whether she really has MS?
euphoniaa wrote:Denon wrote: My wife had been diagnosed with MS 5 years ago. She has some minor urgency issues while sleeping and minor tingling in her feet and hands. No brain fog, nor fatigue.
The first question that came to my mind is, what tests specifically gave your wife the MS diagnosis? MS is notoriously difficult to dx with certainty (well, except for weird people like me who get an instant one ), and people are often dx'd, undx'd, redx'd, etc.
Did her doctor give her a quick and positive diagnosis or was it only after they ruled out other possibilities?
One of the things that's exciting if CCSVI pans out - and once they get the protocols pinned down - is that there might finally be ways to test for MS even before it hits someone hard.
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