FlashHack, the lines you have written reflect the disturbing realizations I and many have come to about the agendas of the neuro and scientist we listened to, as well as the MSSC's parrotting stance we have heard over and over again.
More and more and more science (let's delay this for as long as we can) and who cares about the MSers who worsen and die in the meantime.
Never mind that we didn't do any science on this CCSVI issue for years, you should still be very grateful that we were the first out the door when W5 blew the lid we had been sitting on. Now quieten down like good little MSers while we pussyfoot around for as long as we can.
Please stop all your noise about wanting CCSVI testing, we cannot allow this to happen. Seriously, MSers, surely you know that we cannot "advise" or "recommend" this, because it will only prove how many of you do have this condition - and we would rather just hang on to Buffalo's first study that showed less impressive results than Dr. Zamboni's.
Now don't you even think of harping about the different equipment and protocols used by Zivadinov and Zamboni, because you'll just force us to edit you out to "ensure ease of viewing"....that's to ease of OUR viewing, because we cannot bear to see/hear/read/speak the truth if it doesn't strengthen our case.
As for wanting the treatment - don't even get us started on that, please. We have you-know-who waiting in the wings, ready to tell you that there will be no one for the trials if we treat everyone!!! Goodness, must we keep repeating and repeating ourselves over and over to you...don't you listen? Can't you remember? Oh, we forgot, cognitive issues....never mind...hopefully you'll soon forget all about this CCSVI business too.
Hey, did you get our first invite for the do at the Marc Anthony Salon? How about our reminder? What about the follow-up phone call? WHAT? You turned it down? You turned down an evening of wine, hors d'hoeuvres, free consultations - that was only intended for our top fundraisers?? What is WRONG with you???
What? You didn't raise a cent this year? OOOOOPSSSSSEEEEE! Okay, okay, okay, we were actually just trying to give you some sugar and get you back on our side. Hey, can't blame us for trying, can you?
Well, we are sorry you cannot attend, but please invite anyone else who would like a free evening of munchies and drinkies because we really need to fill the salon for media opps. We need some more photos of MSers happy to remain sick as hell with their only concern being, "What to do with this mop of hair of mine!"
As if we didn't have enough to do, what thinking up better responses for our people other than "I was not aware of this", "people have died"; dreaming up new marketing campaigns like "End MS"...didn't you just love that one???? Brought us in a lotta loot!!
Gosh darn it, we thought our appeal to the government for 10 million dollars for research would have quietened you down, what's up with you people? Just don't forget that you have terrible FATIGUE issues too, and we're sure this fight will tire all of you out very soon..... In fact, y-o-u a-r-e v-e-r-y- t-i-r-e-d n-o-w. Y-o-u d-o-n-t w-a-n-t C-C-S-V-I...
Sorry for my rant, FlashHack.