MSRC CCSVI News Thread

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

MSRC CCSVI News Thread

Postby MSUK » Sun May 16, 2010 11:12 pm

As requested I will now post all breaking CCSVI news appearing on the MSRC website on this one thread.

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Vascular comorbidity & disability progression in MS

Postby MSUK » Sun May 16, 2010 11:13 pm

ABSTRACT

Background: Vascular comorbidity adversely influences health outcomes in several chronic conditions.

Vascular comorbidities are common in multiple sclerosis (MS), but their impact on disease severity is unknown. Vascular comorbidities may contribute to the poorly understood heterogeneity in MS disease severity. Treatment of vascular comorbidities may represent an avenue for treating MS.............

More ... http://www.msrc.co.uk/index.cfm/fuseact ... ageid/2944
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Dr. Embry responds to CCSVI article in Montreal Gazette

Postby MSUK » Thu May 20, 2010 1:06 am

May 19, 2010

Dear Ms Levy and Dr Lang,

I read your recent column on the treatment of CCSVI (Liberation or placebo effect? MS surgery, Montreal Gazette) and was very surprised at how much you left out about the science of CCSVI. You completely missed the implications................

http://www.msrc.co.uk/index.cfm/fuseact ... ageid/2954
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Postby MSUK » Thu May 27, 2010 7:59 am

MSIF statement on CCSVI released

Multiple Sclerosis International Federation (MSIF) Statement

Chronic Cerebrospinal Venous Insufficiency (CCSVI) - 24 May 2010

Introduction
Recent preliminary studies have suggested that a phenomenon called Chronic Cerebrospinal Venous Insufficiency (CCSVI), a reported abnormality in blood drainage from the brain and spinal cord, may contribute to nervous system damage in MS..............Read More - http://www.msrc.co.uk/index.cfm/fuseact ... ageid/2954
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CCSVI Diaries - Diary update by Janet G

Postby MSUK » Tue Jun 01, 2010 10:41 pm

Janet has kindly added three new updates to her CCSVI diary, you can read these on Janet's CCSVI Diary page - http://www.msrc.co.uk/index.cfm/fuseact ... ageid/2989

Also, our diarists have kindly been adding details of what "type" of MS they were diagnosed with and/or had at the time of their CCSVI corrective surgery, you can read all the diaries at http://www.msrc.co.uk/index.cfm/fuseact ... ageid/2982

If you are thinking of having CCSVI corrective surgery, or already have, and would like to contribute your own diary, please contact the MSRC Webmaster at squiffy@msrc.co.uk
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MS patients tell MPs about life after CCSVI 'liberation'

Postby MSUK » Tue Jun 01, 2010 11:35 pm

A group of Canadian patients with multiple sclerosis gathered on Parliament Hill Tuesday to testify how a controversial new treatment has changed their lives, as two Liberal MPs reiterated their call for more research.

The patients included Steve Garvie and Lianne Webb, both of whom were profiled in a recent report from CTV's W5.

Garvie was diagnosed 10 years ago with secondary progressive MS, which left him using a walker most of the time, suffering profound fatigue.

But since he's had what's been dubbed the "liberation treatment" to open up a blocked left jugular vein in this neck, his life has transformed. ...... Read More - http://www.msrc.co.uk/index.cfm/fuseact ... ageid/2954
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CCSVI Diaries - Diary update by Denise

Postby MSUK » Wed Jun 02, 2010 2:51 am

CCSVI Diaries - Diary update by Denise

Denise has kindly sent in her 1 month post CCSVI corrective surgery update.

You can read Denise's latest update at http://www.msrc.co.uk/index.cfm/fuseact ... ageid/2993
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Controversial treatment creating bitterness in Canadian MSS

Postby MSUK » Fri Jun 04, 2010 10:45 pm

The Multiple Sclerosis Society’s national board election next week is expected to become a battleground as members rally to shut out supporters of a controversial treatment.

An e-mail circulated on Friday urged MS Society supporters to sign up to become members, which will give them voting rights.

And the e-mail asks them to use those votes to maintain the balance of the current board, effectively closing out candidates who want resources increased for research into chronic cerebrospinal venous insufficiency, a new diagnosis that suggests MS could be caused by iron blockages in the veins.... Read More - http://www.msrc.co.uk/index.cfm/fuseact ... ageid/2954
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CCSVI Diaries - New Diaries by Stefan and David added

Postby MSUK » Mon Jun 07, 2010 7:49 am

Stefan and David have both agreed to join the MSRC CCSVI Diarists panel. They have both sent in their pre-CCSVI surgery entries, which you can now read via the MSRC CCSVI Diaires page - http://www.msrc.co.uk/index.cfm/fuseact ... ageid/2982

If you are thinking of having CCSVI corrective surgery, or already have, and would like to contribute your own diary, please contact the MSRC Webmaster at squiffy@msrc.co.uk
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MSRC CCSVI Diaries - New Diary - Roy

Postby MSUK » Wed Jun 09, 2010 8:25 am

Roy has kindly joined the growing number of MSRC CCSVI Diarists. You can read Roy's first entry at http://www.msrc.co.uk/index.cfm/fuseact ... ageid/3010

If you are thinking of having CCSVI corrective surgery, or already have, and would like to contribute your own diary, please contact the MSRC Webmaster at squiffy@msrc.co.uk
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CCSVI scanning & treatment about to start in UK

Postby MSUK » Thu Jun 10, 2010 11:27 pm

Image

From the new Essential Health Clinic Newsletter

It's starting! - CCSVI Scanning & Treatment about to start in UK
We are pleased to announce that we have now taken delivery of our Premium Echo Doppler Scanner System. This scanner has been specially designed by Professor Zamboni and his team for the diagnosis of CCSVI.

We are also proud to be the first clinic selected in the UK to have this equipment and we have been told that currently no other establishment in the UK and Ireland is using this sophisticated equipment.... Read More - http://www.msrc.co.uk/index.cfm/fuseact ... ageid/2954
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CCSVI Diary Update - David Boyle

Postby MSUK » Fri Jun 11, 2010 7:54 am

David had his CCSVI corrective surgery yesterday!

You can read his diary entries for this and today and his latest video diary entries at http://www.msrc.co.uk/index.cfm/fuseact ... ageid/3008
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MS patients told it'll be years before treatment

Postby MSUK » Mon Jun 14, 2010 2:59 am

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More than 600 multiple sclerosis patients came to Hamilton hoping to hear about a possible cure to what until now has been a mystery disease with few treatment options.

Many left Michelangelo's Event and Conference Centre Saturday frustrated that it will be years before they can "be liberated" as the treatment has been called by Dr. Paolo Zamboni, the Italian surgeon who has pioneered it.

"I'm 70 years old, where do I fit in?" said Barbara Farraway, of Hamilton, who was diagnosed with MS 20 years ago. "It's hard to wait when it's progressing."... Read More - http://www.msrc.co.uk/index.cfm/fuseact ... ageid/2954
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MS Society board bid foiled for frustrated Multiple Sclerosi

Postby MSUK » Mon Jun 14, 2010 6:37 am

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Multiple sclerosis patients and advocates were thwarted in a bid to win two seats on the MS Society of Canada's board on Saturday, positions they sought in order to push for immediate access to an unproven treatment not available in Canada.

Linda Molyneux, whose 22-year-old son has MS, and Brock Winterton, whose wife has the disease, failed to secure enough votes to unseat two of the five board nominees on a slate proposed by the society's governance committee.

Though their nominees prevailed in the election, the society's executive and professional staff took a verbal pounding. Member after member denounced them for failing to use the society's clout to demand immediate access to treatment in Canada for a condition called CCSVI ---- short for chronic celebrospinal venous insufficiency.... Read More - http://www.msrc.co.uk/index.cfm/fuseact ... ageid/2954
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CCSVI Diary Updates - Janet G.

Postby MSUK » Mon Jun 14, 2010 8:05 am

Janet has kindly sent in two more updates for her CCSVI Diary, which you can read here: http://www.msrc.co.uk/index.cfm/fuseact ... ageid/2989

If you are thinking of having CCSVI corrective surgery, or already have, and would like to contribute your own diary, please contact the MSRC Webmaster at squiffy@msrc.co.uk
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