CCSVI Losing steam?
- Bruce11940
- Getting to Know You...
- Posts: 12
- Joined: Wed May 12, 2010 2:00 pm
CCSVI Losing steam?
After I put my girls to bed at night,I usually spend a couple of hours browsing the web looking for info on ms. I read about new treatments, therapies, etc.
Recently, CCSVI seems to have exploded onto the scene. I became really excited reading the blogs and watching you-tube videos of all the people who have had corrective procedures done.
Recently though, it seems people are backing off the rhetoric.
Is the CCSVI rocket crashing back down to earth or, if you'll permit me to extend the metaphor, can it now assume a low earth orbit.
Believe me...no one wants this to work more that me but I may be setting myself up for major disappointment if this fizzles out.
Anyone share these concerns?
Recently, CCSVI seems to have exploded onto the scene. I became really excited reading the blogs and watching you-tube videos of all the people who have had corrective procedures done.
Recently though, it seems people are backing off the rhetoric.
Is the CCSVI rocket crashing back down to earth or, if you'll permit me to extend the metaphor, can it now assume a low earth orbit.
Believe me...no one wants this to work more that me but I may be setting myself up for major disappointment if this fizzles out.
Anyone share these concerns?
Bruce, I can empathize with your caution. I would encourage you to read all the papers, links, and user input you see on this site.
I have done quite a bit of independent research as well. I will tell you that I have seen definite similarities with other iron- based brain diseases and MS- some of the symptoms are idential. Also, if you are familiar with the Swank diet (which bans red meat for the first year), you will see that people did feel better (myself included- I was on it for two years and have just resumed again)- could it be because you are taking less iron in (and therefore less to remain in the brain due to the reflux?)?
At the end of the day, people are getting the treatment and seeing real results. Real, tangible results. I have not had any real results yet dispite a myriad of treatments, so I figure I can't go wrong here. Besides, if I have blocked veins responsible for draining blood out of a major organ, I think it is a good idea to get that fixed anyway, right? How can it be a bad thing?
Keep reading, keep believing, keep speaking. The more of us that talk, the harder it will be to shut us all up.
I have done quite a bit of independent research as well. I will tell you that I have seen definite similarities with other iron- based brain diseases and MS- some of the symptoms are idential. Also, if you are familiar with the Swank diet (which bans red meat for the first year), you will see that people did feel better (myself included- I was on it for two years and have just resumed again)- could it be because you are taking less iron in (and therefore less to remain in the brain due to the reflux?)?
At the end of the day, people are getting the treatment and seeing real results. Real, tangible results. I have not had any real results yet dispite a myriad of treatments, so I figure I can't go wrong here. Besides, if I have blocked veins responsible for draining blood out of a major organ, I think it is a good idea to get that fixed anyway, right? How can it be a bad thing?
Keep reading, keep believing, keep speaking. The more of us that talk, the harder it will be to shut us all up.
- Hope66
- Family Member
- Posts: 62
- Joined: Tue Feb 24, 2009 3:00 pm
- Location: Southwestern Ontario, Canada
- Contact:
That's what I'm hoping for too J...but I'm in Canada so it's been pretty much full steam ahead here...at least in terms of people who have some power talking about it, debating it etc.jackiejay wrote:yes, Bruce...I've noticed the same thing as you.......maybe it's the lull before the storm, so to speak....hope that's what it is....
I do wonder what the "tipping point" will be (to borrow a concept from Malcolm Gladwell).
Be well,
Hope
-----------
Dx March 2003
Avonex
Dx March 2003
Avonex
I find it's exciting to be in on the ground floor of what could be such a transformative discovery. I first heard about ccsvi it November and came onboard in January and even in that short time there has been much progress!Hope66 wrote:That's what I'm hoping for too J...but I'm in Canada so it's been pretty much full steam ahead here...at least in terms of people who have some power talking about it, debating it etc.
I do wonder what the "tipping point" will be (to borrow a concept from Malcolm Gladwell).
"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition
- thornyrose76
- Family Elder
- Posts: 462
- Joined: Mon Nov 23, 2009 3:00 pm
If the theory is hogwash why are people that have had the treatment, that have noticeable mobility problems, remarkably better some 24 hours after having the procedure? These are peoplle that have posted the before and after footage online, there aren't many mind you but nonetheless there there. It's impossible to fake it, if you've had issue with your mobility you cn easily pick up on the fact that it's legitimate, the improvements. check 9gabbycats on youtube, and there is another, a blog, the link is found thru thisisms-before and after footage.
- jackiejay
- Family Elder
- Posts: 178
- Joined: Wed Apr 28, 2010 2:00 pm
- Location: Ontario, Canada
- Contact:
I don't think it is hogwash at all. In fact from what we know already, it seems to make perfect sense and there is a definite link to MS. I think we are just sort of in limbo while more facts (studies,etc.) and protocols are in place before CCSVI testing and treatments are the norm. I think that there is definite hope for that to happen in Canada....just going to take a bit of time...which can be very frustrating.
If you think that CCSVI looses steam or if you're in need of new brain food, look at the transscript of the workshop that Dr. Zamboni held on April 24:
http://csvi-ms.net/files/sardinia_ws_20100424.pdf
Dr. Zamboni et al describe what's going on now and there are quite a few interesting things in it, such as:
http://csvi-ms.net/files/sardinia_ws_20100424.pdf
Dr. Zamboni et al describe what's going on now and there are quite a few interesting things in it, such as:
Dr. Zamboni wrote: I have found something very interesting that the institute that proposed the interferon and had the curiosity to see that, aside for the immunomodulators factor, there is also a vascular one and neurologists have always had the idea that there is this vascular aspect, so I think they are ready to understand this.
"There is only one good, knowledge, and one evil, ignorance." Socrates
I think a lot of us forget of the # of people in the medical community that have friends and family that have had this done. Even Drs have had it. And look at the Tracking Thread. I am not saying that everyone should have this done, but I have had this disease for over 16 years and this makes the most sense out of anything I have seen along the way. I didnt jump at the questionable therapies along the way. It took me about 12 hours of research on my computer to realize (at least in my mind) that this is very very promising.
I hope the best for you all in your journey and hope to see you on the Tracking Thread.
I hope the best for you all in your journey and hope to see you on the Tracking Thread.
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