This Is MS Multiple Sclerosis Community: Knowledge & Support

Thanks for the well wishes Drury!

Hi Patches,
It is Lynda "the trouble maker" from our group. How are you and your lovely wife "bless you" doing? Good to hear everyone made it home after their time in Poland. Seems like each of us had there own issue, whether it would be the volcano ash, passports, flooding or airline mishaps, we all found our way back home safely.
Thanks to Kate for the great informative post. It really tells it like it is for all the people setting off on their "libertion" adventure.
So far between my family, friends and I the following subtle changes have been noticed.
warm hands and feet
less waves of fatigue
better colour
stronger voice
stronger right hand
better coordination
can hold a pen and write my signature
right hand dosen't shake as much
spasms seem shorter and not so intense
That is it for now, soooo.....all I can suggest is "relax" so you can enjoy all the subtle changes that are happening.
Cheers!!!
Lynda

Alan i have a stent in my azygos vein, and dr. ludyka told me blood thinner between 2 to 12 months, and aspirin for life, now i am totally confused! what should i do, blood thinner for life or aspirin for life?

Alby

I wondered about this too. So I asked my doctor. There are two types of stent: plain metal and drug-eluting stents. In the UK the recommendation is six weeks of blood-thinners for a bare metal stent and 12 months for an eluting stent. So you need to know which kind you have.

I had heard someone say on TIMS that Euromedic used cobalt in which case six weeks would be right. But I suppose they could have changed. You really need to find out which you have.

Wow,
Another great place to go, I am so happy for everyone!

AmcG,

Euromedic uses Nitinol stents which is an alloy of nickel and titanium so I guess it classifies as bare metal stent.

Mila

I wondered how it went for you grammastang. Good to hear its fine.

Hi Lynda,

Glad you got back safe and sound, can't believe it's nearly 2 weeks since we had the procedure !!
I'm still feeling good, over did it last week and needed a day in bed, but that was just me being cocky I think

Fatigue seems to be getting better every week, so that's good, walking also seems a little better, but will wait and see.

Keep us posted on how you're getting on and say hi to Jan for us.

Take care,
Alan

thank you all for the info, now i feel better.

Alby,

I am just wondering, Didnt you get your stent certificate? I got something like this, where it says what kind of stent is it and all the details and I am supposed to wear it on me all the time, just in case something happens like and acctident or something, so that doctors know that I have stent in mu jugular vein.

Mila

Hi troublemaker,
It's nice to hear you are feeling some more improvements. I'm sorry we missed you at the airport in Calgary, our bags came off the carousel right away and we just flew out of there. Good thing too, as a friend was waiting there to take us home (a nice surprise).

I hope the rest of your journey home was comfortable. Please say hello to Jan for me and tell him that my local beer store sells Zywiec!

Randall

Hello AMcG,
On my discharge paper it says SMART sent only. I checked on the internet and SMART makes both type of stents. I email Dr. K 2 weeks ago but he did not answer yet... Since you were there at the same time as me I assume we have the same type, which is ???

There is only a Plavix dosage on my prescription, no duration. What does it say on yours?
Thank you. I hope you are still enjoying you Liberation!

i got a piece of paper saying the type of stent and the name of the blood thinning drug, and aspirin 150mg. i didn't know with some types we don't need thinners for life, although dr. ludyka said two months is enough, that was early feb. of this year. he DID NOT SAY that i HAVE TO KEEP IT WITH ME ALL THE TIME, and he didn't say where the stent is located at other than it''s in azygos!!!!!!!!

(i miss poland, love to go back again as tourist.)

... tell him that my local beer store sells Zywiec!

Randall[/quote]

Lucky you I LOVE ZYWIEC! We don't have in Qc...
(I know I'm no a Lady, I like beer!!! )

vivavie, those guys in poland do a good job, but unfortunately are not methodical, disciplined, or organized as much as we are here. i contacted them for my stent location three times and never heard back from them with a proper answer, they just said it's in axygos which i was told in poland aready, so i assume they are too busy but that shouldln't be an excuse, especially when we don't live in poland. so someone told you to have that info with you all the time? who? i am kind of confused this dr. k ispart of ludyga team or different? are there now two different and independent clinics doing this work? if so do dr k's team have a website? i searched through and couldn't find any.