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Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

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CureIous
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PostPosted: Fri Jul 09, 2010 10:01 pm 
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SandyK wrote:
I just received this email today...

As you know, recently 10 MS patients participated in a CCSVI Liberation procedure pilot group, the treatment was performed by Dr. Rafael Moguel, Director of the Clinic of the Heart and his team of specialists at Amerimed Hospital in Cabo San Lucas, Mexico. The procedures were deemed very successful as all patients showed immediate and meaningful signs of improvement in mobility, balance and circulation.

The Clinic is now scheduling patients seeking CCSVI liberation treatment beginning June 28th. And since we do not require nor accept deposits, the waiting list is growing at a rapid rate. At this time the cost of the procedure has been established at $9,750.00USD.

The Clinic will only be performing 2 procedures per day therefore those names already on the list are being contacted first to schedule treatment. Since your name is one of the first on the list your treatment could take place as early as next week. Should you require additional information prior to making this very important decision please feel free to contact me.

With kindest regards,

Anyone care to talk about their experience?



I think the procedure kinda sells itself, why are they juicing it up so much? Creating artificial shortages? Never heard of such a thing. Oh I have but this is different. Reminds me of those late night infomercials, where "if you call in the next 10 minutes" that play for months on end.

Please be careful people. Very very careful. 9.7k is a TON of money in Costa Rica. Other than that, good luck and keep us posted.

_________________
RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video: http://www.youtube.com/watch?v=cwc6QlLVtko, Virtually symptom free since, no relap
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willtravel
 Post subject: CCSVI in Costa Rica
PostPosted: Fri Jul 09, 2010 10:19 pm 
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Appreciate your concern CureIous, but I was asking about peoples experiences with the CCSVI procedure in Costa Rica (not Cabo San Lucas, Mexico). It appears from previous posts that some people either have had their procedure done in June or are about to have it done this week in Costa Rica. Would love to know how people got on.
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Blaze
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PostPosted: Sat Jul 10, 2010 10:18 am 
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I agree with willtravel. I would love to hear about the experiences of those who have been to Costa Rica. As someone else said in a post about Poland--the good, the bad and the ugly, whatever it may be.

So, please anyone, who has been to Costa Rica, please tell us how it was--and more importantly, how you are doing.

Thanks.
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Vhoenecke
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PostPosted: Sat Jul 10, 2010 11:02 am 
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I think they are just there now and they have to stay for quite a while (2 weeks?) is what I heard.
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CureIous
 Post subject: Re: CCSVI in Costa Rica
PostPosted: Sat Jul 10, 2010 11:17 am 
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willtravel wrote:
Appreciate your concern CureIous, but I was asking about peoples experiences with the CCSVI procedure in Costa Rica (not Cabo San Lucas, Mexico). It appears from previous posts that some people either have had their procedure done in June or are about to have it done this week in Costa Rica. Would love to know how people got on.


Sorry bout that, had just finished reading the entire thread and quoted the wrong post in my reply. One good place to start is to do a search as outlined in the "new people start here" thread. http://www.thisisms.com/ftopict-9795.html

This will enable you to do searches on various topics. I did one on Costa Rica, it yielded 63 results, but no post-op reports that I could find. Stanford had what, 60+ people, a very small % reported step by step afterwards, most have moved on to their own thing. Just saying the numbers are going to be very small as the reports trickle in in the coming months, trying to gauge whether to have an operation done in a foreign country based on internet reports is risky at best.

Mark

_________________
RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video: http://www.youtube.com/watch?v=cwc6QlLVtko, Virtually symptom free since, no relap
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MSwithAttitude
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PostPosted: Sat Jul 10, 2010 2:50 pm 
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All the action for Costa Rica is happening at the Facebook group. It has been amazing. I am here now and have met a few treated people (mine is Monday) and those that have come and gone have glowing reports. Improvements galore. It's been fantastic. See the Facebook group for testimonials, videos, etc. Woo hoo!
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CureIous
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PostPosted: Sat Jul 10, 2010 4:29 pm 
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MSwithAttitude wrote:
All the action for Costa Rica is happening at the Facebook group. It has been amazing. I am here now and have met a few treated people (mine is Monday) and those that have come and gone have glowing reports. Improvements galore. It's been fantastic. See the Facebook group for testimonials, videos, etc. Woo hoo!


Don't get me wrong, all of us want everyone checked out and treated as they are able or willing, but that FB page has 25 people on the testimonials page, and from what I saw, only 2, maybe 3 have actually made it home yet. We'll take glowing reports any way we can get em, just like to see bunches more make it home safe and sound and give their 3 month follow ups and not only how they are doing, which is the reason we're all here after all, but what their level of monitoring is too and what their GP's are saying, assuming that was all set up beforehand.

From what I gathered there's no stents going in correct?

_________________
RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video: http://www.youtube.com/watch?v=cwc6QlLVtko, Virtually symptom free since, no relap
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Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

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