Liberation or Placebo Effect (article)

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Re: Newbie Mistake

Postby prairiegirl » Thu May 20, 2010 10:57 am

FlashHack wrote:Whitey, you shouldn't waste your time with Bob (Lyon). He's a paid troll and merely posts to goad others into responding. Save your energy for more worthy adversaries. Trust me, I've been there.


FlashHack, you seemed pretty willing to be goaded into responding yourself, and with an insult to boot to pretty much ensure that Lyon would respond back.
(Lyon: "Admittedly, once they start it I've been known to trade barbs.")

Think you might have started this one??
(ARRRgh- can't believe I am responding myself, but but had to get this thought out-- it takes two to tango... not even trying to defend anyone here, but don't lay all fault on one person for the lunatic direction this thread has taken.)
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Re: Newbie Mistake

Postby FlashHack » Thu May 20, 2010 11:01 am

prairiegirl wrote:
FlashHack wrote:Whitey, you shouldn't waste your time with Bob (Lyon). He's a paid troll and merely posts to goad others into responding. Save your energy for more worthy adversaries. Trust me, I've been there.


FlashHack, you seemed pretty willing to be goaded into responding yourself, and with an insult to boot...

Sorry, but "troll" was not an insult, but an internet term:
http://www.urbandictionary.com/define.php?term=troll
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Postby prairiegirl » Thu May 20, 2010 11:16 am

FlashHack, I was not referring to the word "troll" (not an apt description in this case, BTW) but to the tone of your entire post, which I am sure you can see is indeed insulting ("waste your time","save your energy for more worthy adversaries"). Again, not trying to take a side here, but take a look at the message you sent out and decide for yourself if it is insulting.
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Alternate Wording

Postby FlashHack » Thu May 20, 2010 11:21 am

I'm open to alternate wording. "Waste of keystrokes..." perhaps? :roll:
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Re: Newbie Mistake

Postby Lyon » Thu May 20, 2010 11:41 am

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Last edited by Lyon on Mon Nov 21, 2011 4:07 pm, edited 1 time in total.
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Postby mshusband » Thu May 20, 2010 11:55 am

Lyon, this isn't an attack, just a question.

IF you don't believe in CCSVI - why do you even lower yourself to post on this forum (for something you try to knock at every chance)?

and IF you're not knocking it, and all you're saying is more research needs to be done ... NOBODY here disagrees with that.


and IF you don't believe in CCSVI and you're SO confident in your stance that revimmune or campath or whatever it is you push so hard ... how about we make a little bet now?

Let's say IF CCSVI pans out in the next year ... and you can't go those 12 months without retaliating or attacking someone on this site (or even posting in the CCSVI forum) ... then your wife can't EVER get the procedure?

IF you can do that ... I'll give you the name of a doctor willing to do it at the end of those 12 months. I know of at least 4 right now ... no wait lists, no lines ... no shut down ... have done the procedure.

Ask your wife which she prefers. Crazy chemo ... or a simple procedure. Then we'll talk.


Sorry ... it's put up or shut up time in my opinion ... let us know where you really stand.
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Postby Lyon » Thu May 20, 2010 12:08 pm

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Last edited by Lyon on Mon Nov 21, 2011 4:08 pm, edited 1 time in total.
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It's Settled

Postby FlashHack » Thu May 20, 2010 12:22 pm

"Waste of keystrokes" it is then. :!:
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Postby LR1234 » Thu May 20, 2010 12:27 pm

Lyon, you causing problems again?? :P

I think we are all very very aware of your stance on CCSVI and whilst we all respect that must you keep challenging the theory??

Even if CCSVI does not turn out to be the big idea that we all hope it is let us live with hope until someone proves otherwise (you don't need to keep raining on our parade, especially in the CCSVI forums!)

We all agree testing and studies are needed but I think we are all pretty much in agreement that we don't want to wait for the procedure as everyday in the world of MS could see us relapse/progress and be left with permanent damage.
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Postby Lyon » Thu May 20, 2010 1:06 pm

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Last edited by Lyon on Mon Nov 21, 2011 4:08 pm, edited 1 time in total.
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Postby scorpion » Thu May 20, 2010 1:10 pm

LR1234 I humbly disagree with you about the "raining on your parade" part. The CCSVI forum, like any othe forum on THISISMS, is an open forum for everyone effected by MS to discuss ideas and express their viewpoints. The CCSVI forum is not set aside exclusively for any one member or group of members. I disagree with Cheer, Embry, and others on this forum who try to mislead people into believeing that CCSVI's relationship to MS has been proven beyond a doubt and ridicule others who do not follow suit. I disagree with the way they paint good people as conspiarators just because they do not buy into their perception of the facts. Looking at the facts I am hopeful that their may be a connection between CCSVI and MS. If there is a connection I certainly hope that correcting CCSVI will somehow benefit us but as of yet, besides some bloggers and doctors who profess they are here to rescue us from the evil world of big pharmas, neuros, and now celebrities, we just do not know. Until the "liberating" of our veins is proven to benefit us visitors and others who come to this site looking for information are at least owed the oppurtunity to hear opposing viewpoints.
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Postby malden » Thu May 20, 2010 2:01 pm

scorpion wrote:LR1234 I humbly disagree with you about the "raining on your parade" part. The CCSVI forum, like any othe forum on THISISMS, is an open forum for everyone effected by MS to discuss ideas and express their viewpoints. The CCSVI forum is not set aside exclusively for any one member or group of members. I disagree with Cheer, Embry, and others on this forum who try to mislead people into believeing that CCSVI's relationship to MS has been proven beyond a doubt and ridicule others who do not follow suit. I disagree with the way they paint good people as conspiarators just because they do not buy into their perception of the facts. Looking at the facts I am hopeful that their may be a connection between CCSVI and MS. If there is a connection I certainly hope that correcting CCSVI will somehow benefit us but as of yet, besides some bloggers and doctors who profess they are here to rescue us from the evil world of big pharmas, neuros, and now celebrities, we just do not know. Until the "liberating" of our veins is proven to benefit us visitors and others who come to this site looking for information are at least owed the oppurtunity to hear opposing viewpoints.


Well said. Agree. My tread too was organizable hijacked by "Just Do It!" people and bashed down.

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Postby Lyon » Thu May 20, 2010 2:09 pm

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Last edited by Lyon on Mon Nov 21, 2011 4:08 pm, edited 1 time in total.
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Get liberation. Even if you have to go to another country.

Postby 1eye » Thu May 20, 2010 2:23 pm

I'm not a doctor. I'm not even hungry, anymore. But for what it's worth: Get Liberated now. Then join the nearest class action. It won't be long, now, and petty people all over will have to find a new way to waste their and everyone else's time.
"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'MS' is over - if you want it
Patients sans/without patience
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Re: Get liberation. Even if you have to go to another count

Postby Lyon » Thu May 20, 2010 2:40 pm

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Last edited by Lyon on Mon Nov 21, 2011 4:08 pm, edited 1 time in total.
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