Dilemma: choosing the right CCSVI clinic?

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Dilemma: choosing the right CCSVI clinic?

Postby Asher » Tue May 18, 2010 12:34 pm

As global demand for CCSVI treatment is soaring, private CCSVI clinics are popping out of the ground all around the globe. This is taking some of the pressure of the endless waiting list in Poland. This creates however a new dilemma; making the right choice. Which criteria to use when weighing the options?

I for one am hesitant to opt for a clinic that does not offer stenting as an option if this proves to be necessary. Seems to me this could be a waste of time and money. Any thoughts/advice?
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Postby Daisy3 » Tue May 18, 2010 12:41 pm

I worry more about the doctors being able to locate the blockages.
Using the balloons is fine with me. Once the person experiences improvements they will know if they want to risk taking a stent if they end up needing another procedure.

The Private scan company working in Germany sound good as part of their package their offering a six month check up with a free repeat procedure if required.

Just need their details now:_)
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Postby Asher » Tue May 18, 2010 12:46 pm

Well Daisy, check out the Dutch CCSVI thread
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Postby cocochanel » Mon May 31, 2010 1:54 am

It's sort of a crazy question to ask a doctor, but you need to ask them if they've been trained. If you're lucky, they've been trained by Simka and his team because they have the experience - close to 400 now - and they've learned about stents and blockages and valve problems and found safe ways to open them up and keep them open.
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Postby Cece » Mon May 31, 2010 7:57 am

I am the opposite...I am hesitant to use a clinic that does offer stenting! Because if told, "I've ballooned it twice, it won't stay open, would you like a stent?" I would say yes, because in that moment it's a choice between feeling better and not feeling better. But from a step back I believe that I have time for them to do a little more research on neck stents and see even what sort of problems develop in the first year or two of use (let alone five years, ten years) and for them to get a proper venous stent on the market. So this is a reason for me to exclusively look "local" (counting the whole US as local) so that it's possible to go back a second time and it's cross-fingers covered under insurance.
"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition
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