I don't have MS diagnosis or lesions on the brain/cervical spine. I did have optic neuritis in 2006 with damage- increasing neuro-which exploded with treatment for lyme first with herbs and now just a few weeks of drugs. I have total insomnia ,neuropathy in neck/brain- hard to describe and unbearable, weak and numb extremities, shaky all over, weak neck, neck jerking, body jerking and twitching, burning all over, gait and balance and dept perception all off, ear pain, eye pain,dizzy, face numb etc etc etc-most of which exploded after crash from a few weeks of drugs and herb tea- I'm a mystery- ihave MCS and the LLMD's are telling me lyme and coinfections--but i don't seem to tolerate any treatments what so ever-or it will be living hell for me to go through the lyme treatment if I can make it to the other side w/o damage-since just a few weeks of drugs pushed my body into this living hell ( i was declining neurologically before/but nothing like this)
So just a little bit on my story. So in m y quest to figure out what the Hell I do have since I've seen 2 neuro's with no answers-sought out this guy thanks to this board.
He said I have 2 of the 5 criteria according to zamboni. He said I had reflux in my right jugular-- and also some of the veins were doing the opposite of what they should be doing when lieing versus sitting. I could not follow all of it since I am not as CCSVI literate as most on this board. He is going to mail me my report and I can post details to this board.
I think he mentioned the reflux is one of the worst issues? but I don't have lesions?
I'll post more detail- i think it's all too premature for me. I fully expected things to be normal since I don' t have lesions and seem to pass the neuro's MS tests even though I'm in neuro hell /homebound now for 6 months/in agony/not living life.
He was new at this too-- very nice man/doc and open to treatment if I wanted it.