Frankfurt, Germany

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Frankfurt, Germany

Postby sumsum » Wed May 19, 2010 12:13 pm

Hi guys,

I am have my appointment for the doppler and MRV beginning of June and was just wondering if those of you who have been there could tell a little bit about their experiences.

I know that I have read somewhere on the forum that someone had a problem with getting operated. But are there others out there who have been to Frankfurt and who are willing to comment?


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Postby Frank » Wed May 19, 2010 1:42 pm

I have read in a comment that the docs in Frankfurt do not test the azygos vein. As it seems important to have both (jugular and azygos) checked I would suggest that you try clarify this issue in advance.

Please let us know about your experiences in June.

Treatment: Gilenya since 01/2011, CCSVI both IJV ballooned 09/2010, Tysabri stopped after 24 Infusions and positive JCV antibody test, after LDN, ABX Wheldon Regime for 1 year.
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