Info on UBC trials in Canada - Dr Tony Traboulsee interview

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Info on UBC trials in Canada - Dr Tony Traboulsee interview

Postby Notdoneyet » Wed May 19, 2010 9:03 pm

Below is a link to download the podcast of Nelson Before Nine's broadcast of May 4, 2010 on Kootenay Co-op Radio, in Nelson, BC, Canada.

http://cjlypodcast.net/nelsonbeforenine ... 4_2010.mp3

Of particular interest is an interview with Dr. Tony Traboulsee. He is the neurologist who is heading the clinical trials for CCSVI at the University of British Columbia, Canada. The interview is about 1/5 of the way in. The host also speaks with two MS patients who are keen on having the procedure made available in Canada, as well as the community co-ordinator for the MS Society of Canada, in the West Kootenays. Note how Dr Traboulsee refers to CCSVI as a crisis for the MS establishment in Canada and he also points out that if they just gave everyone the procedure, there would be no one to do research on.
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Postby Shoonie » Wed May 19, 2010 9:34 pm

8O Please tell me he is kidding.

Fantastic. This is my husband's doc at the MS clinic.
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Postby PCakes » Wed May 19, 2010 10:05 pm

Dr Murray said similar in the parliamentary session. Frightening.
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Postby Salvatore24 » Wed May 19, 2010 10:24 pm

Transcript available? Or can anyone give a rough idea on the main points that were said?
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Nelson Before Nine

Postby Notdoneyet » Wed May 19, 2010 10:45 pm

You'll have to listen to the interview and draw your own conclusions, Salvatore. I decided to seek treatment abroad. It's a one hour show and it's all kind of interesting. The whole show is an hour long, but the Traboulsee interview is 15 minutes.

He's really pretty vague about the study, when it starts and who will take part. It's a good listen and the interviewer asks some good questions.
Last edited by Notdoneyet on Wed May 19, 2010 11:43 pm, edited 2 times in total.
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Postby lilsis » Wed May 19, 2010 10:48 pm

http://www.blogtalkradio.com/search/ccsvi/

Have a listen to Anne Kingstone, author of the Macleans article, she relays that Yves Savoi, CEO of the Canadian MS Society supports a pharmaceutical approach to treating CCSVI, not a surgical one.

Drugs make the world go round, doesn't matter if its cocaine or copaxone.
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Postby Billmeik » Thu May 20, 2010 9:17 am

nelson is a great town
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Postby Brightspot » Thu May 20, 2010 10:01 am

Notdone
Thanks for posting this in it's own thread. Everyone should listen to it.

Here are some of the comments I posted in another thread after listening to the Nelson Before Nine interview.

Am just now listening to the Nelson Before Nine podcast, and can hardly wait to hear the wonderful Dr. Traboulsee speak. He has done a fabulous job of ensuring that MS patients are denied the option of consultation and treatment by vascular specialists in British Columbia.

Oh, I just heard it. He talks about how arteries are important and veins not so much in terms of causing health problems.

He says that the work (studies on CCSVI) has "only come out of one place". Does he mean California, Buffalo, or Italy, or Poland, or Jordan, or Kuwait, or Australia, or what??

Traboulsee claims that Dr. Zamboni has said that an independent group such as his (Traboulsee's) will need to reproduce his results to determine if they are valid. I must have missed Dr. Zamboni's specific comment on this.

Traboulsee says they (Traboulsee's group) are working with ethicists. I wonder if he has consulted ethicists regarding his policy of denying persons with MS any access to vascular specialists even if they have evidence of vascular problems. I assume he has not, and can only hope he does so soon for the sake of those of us whom he claims to be helping.

The persons with MS who were interviewed stated very clearly that they do not want neurologists to have a say in their vascular medical care. One of them commented that he does not feel his dentist should have a say on the issue either. They also both commented on the dismissive and disrespectful attitude of the MS Society toward those of us with MS at risk of CCSVI and seeking vascular screening. Listen carefully to what the persons with MS say when asked if they feel the MS Society is getting in the way of persons with MS getting help.

Traboulsee encourages us all to take with a grain of salt what we hear on the internet. Excellent advice, especially for those who have been getting their information regarding CCSVI from the website of the MS Society.

Wonderful interview!! The person doing the interview did a great job! I recommend listening to it.

Loved the CCSVI political protest song by the Canadian woman songwriter.

Go Canadians!!
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Postby mangio » Thu May 20, 2010 4:58 pm

Someone posted this video story on their w-site yesterday.

http://tinyurl.com/3yzwhu3
The 7.30 Report_ABC

Luckily for this young man the "no" response
was challenged and a fortunate outcome to celebrate.
Very telling.
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