I guess the same questions as for ozark.
what tests did they do? No venography? Can you see the status of the Azygos? Will they track you also as you find treatment for your CCSVI.?
Do they make any treatment recommendations? refer for treatment?
Thanks, Rose ')
I think OC might have answered some of these questions...
I've wanted to pursue a local option for a while now. I now know that I have issues with the veins, so I can continue that with a bit more proof. I don't have a specific doctor lined up, but do have a few IRs in my area I've been communicating with.
My outcome is a bit different from OCs. I have an abnormal valve and slight stenosis on the right (this is from the Doppler). I also have deep cerebral vein reflux. That means I meet two of the criteria for CCSVI. However, the MRV is negative... so the stenosis doesn't show, and there are no obvious collaterals like I've seen in the MRV images of some. folks.
I suspect that I have azygous involvement, or possibly other issues causing the reflux, but the azygous is difficult to image on MRV... I've been told and read that the heart and lungs get in the way of a clear image of that on MRV.
So, I know that I have CCSVI, but don't know for sure what the main cause is...
BNAC is recommending a cautious approach. They are not referring or recommending treatment at this time. I knew going in that it was diagnostics only, and I'm glad to have contributed to their research. The results of this diagnostic testing will also be published.