Frankly, this article gives me cause to celebrate!
"They're used to holding back information from the patients. And what's happening is they can't do that anymore."
How incredibly condescending.
WE WANT a discussion on CCSVI. Lots of discussion, in fact. We should be able to have an honest conversation with our neuro and not get poo-pooed or belittled or told the wrong facts about the treatments.
I noticed an interesting commonality on a few of the posts. When I brought up CCSVI to my neuro, he said two people died. I know I read at least two other posts with the same feedback. You know what he didn't discuss with me? Any of the scientific research. Or the success stories, or even the fact that CCSVI is real or not. First thing- two people died. Not only is it inaccurate to say that, but it is a clear scare tactic.
Because no one has died on the meds. Right.
I think the best evidence of "us vs. them" is the fact that articles are even written on the "us vs. them" topic. If we were all on the same team (and by all, I mean the patients and their caregivers and advocates, including neuros and the rest of the medical team), then our united voice should be screaming to look at these potential avenues very quickly.
Three veins angioplastied. One renewed life.