It s a good article indeed. Only because it is obvious that they have realized that there is a big wall nowadays which they cannot overcome. It's called "MS patients have the right to decide on their own". For better or worse...we ll see.
It s a good thing to see that neurologists acknowledge our need to explore. It is good that they begin to realize that they do not own us even if we are wrong (which of course there is no way for them to know yet).
I might take it further and say that they know now, that all they can do is watch the story unravel. After all, they will be there for us whenever we need them. No worries there. We are PAYING them. We own THEM. And for the first time, they know it. This is something on its own.
The situation that this article describes is true.
Yet, no article to this day has ever answered the big question: why should MS patients not check their veins out? Every time i read something against Zamboni's theory it has something to do with stent migration and death which of course is not true. And if it was, it would have nothing to do with Zamboni. The masses have become difficult to manipulate since information is free via the internet.
It is obvious, even to an untrained eye that many doctors are trying to fight CCSVI with plastic bullets and speculations. The link between ccsvi and ms has already been made but all they do is trying to stop people from having a simple doppler in their quest for a better quality of life.
On the other hand, more and more vascular specialists are treating patients. Arent they doctors too? They know a bit of medicine also. I have MS and i had very bad flow in my jugulars and my azygos. WHY should i be left untreated? Having MS makes me a noncandidate for the rest of the conditions i may have? And if so, why?
At this point, more and more research is needed. The way i see it, if this huge MS patients movement didnt exist, NO RESEARCH would be done whatsoever. And this can only be described as victory. Even if it turns out to be money thrown out of the window, no regrets. The millions they have already spent for useless and dangerous drugs gave the pharmaceutical companies billions in return and nothing to us.
We all have to realize that history is being written here. There is probably a connection between vascular issues and MS at least for some of us. After all, every demyelinating disease is named MS by "specialists" until proven otherwise. As long as we see CCSVI as the start of a new era we are good. We must help in any way we can so people who will be diagnosed in the future will have better options rather than more toxic, potentially lethal, expensive drugs.
Lets see this situation as exactly what it is: patients suffering from a chronic progressive uncurable condition taking things in their hands. There is nothing wrong in this. And there is nothing for us to loose. I for one will never feel guilt no matter the outcome. There is no way for someone to make the wrong choice when there are no options people.
There are probably many more factors involved in this disease's course.
I dont believe that the liberation procedure will free all of us from MS. But i think that taking the ball game to a whole new level is something that has to be done. So far, all MS researchers FAILED. Big time.
I have every right to speak. Like we all do. I did some serious chemo, like many of us have done. I know it doesnt work. I know it targets my immune system only to stop relapses. Is this good? I guess... Is it enough? No. It is not. It clearly has NOTHING to do with what triggers my body to act like this. All i hear is for new drugs coming up. All i hear is statistics and numbers concerning relapse rates and NEVER stopping progression.
All i want is for new avenues to be explored. And i am happy that the ccsvi train cannot be stopped any more. Because in a couple of years time we ll know if there is hope or not. What if there is? Dont let them get in your heads. See for yourselves. That simple.
Last edited by costumenastional
on Sat May 22, 2010 3:20 am, edited 1 time in total.