I, with my mother's help , am going to hopefully be examined and have the angioplasty done in New York with community care physicians.. Im in pretty rough shape . I first got sick at 20 and immediately progressed, just went down hill and fast . I'm 34 and have been in a wheelchair since 26. I haven't walked since breaking my ankle 8 years ago this fall. I can feel, burning, neurological pain from lower thigh down. My leg muscle tone isn't too bad , legs have alot of spacticity (thats the term right?). I catheterize , and Ihave hand tremors. right hand is a little weaker than the left . Trunk ataxia . If I over do it, my hands are a bit useless, weak but with rest they come back on me . My body physically tires very easily now . Have trouble sleeping. Can type but unable to write-
With all of that, I feel I need to do some thing, and so have decided to go to New York or at least hope to to get veins checked and hopefully have th angioplasty. But I have a lot of concerns and zero guidance from My doctors here in Winnipeg. Here's the point:
I go to New York, everything paid for by getting loan from bank (it can be done I'm told but need to inquire) and then what? My thoughts are I want to at least try and rehabilitate myself, but how would I go about that when I haven't walked in almost 8 years? Could aqua therapy help, but then who is going to help me with tht? They don't exactly have the greatest neuro rehab here, atleast I've been told that by a physiotherapist...what happens if restonisis occurs? Or if stents I have problem? Wpg is quite far from New York and I don't have a lot of money but I am quite desperate. Any guidance I would be really grateful- please help!!!!!