national multiple sclerosis society summer 2010 edition

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

national multiple sclerosis society summer 2010 edition

Postby blossom » Sat May 22, 2010 6:20 pm

just got mine today. anybody else get theirs? what do you think? PAGE 1-SPECIAL REPORT ON CCSVI. glad to see they finally crawled out of their hole and are at least putting something out there. gotta be glad for that finally. although, if i was someone that had not been reading everything i could find about ccsvi when i first become aware of it over a yr. ago (and trying to get tested and treated) with no success. i would be thinking wow here is something that might help me someday. the article was somewhat informative. it was their story, as they say, and they will tell it the way they want to. at least they did put the part in where dr. zambonni said that if your ms is not being helped by anything and there are no options--he would recommend that you try to seek out a doctor that will test you and treat you on a compassionate basis. well-duhhhhh, seems that there are a lot of us trying to do that-but when they get shut down and we have all these unnecessary obstacles what the hell do you do. of course they emphasised more research which is good we all would agree. they emphasised that money is low and they need money for that research. yep, it takes money. if i would have read that WE THE MS SOCIETY ACKNOWLEDGE THE URGENCY TO GET ALL PEOPLE TESTED PROPERLY AND TREATED PROPERLY RIGHT AWAY AND WE ARE MAKEING SURE THIS WILL BE DONE NOW!! then my money may go there again sometime. but, in the meantime any money i am connected to will go to people that are doing it now. we all can't wait for yrs. for trials to be done.
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Postby Cece » Sat May 22, 2010 6:27 pm

"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition
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Postby L » Sat May 22, 2010 7:10 pm

Not bad. Quite brave of them. Obviously they can't frame things quite as you are I might..
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