NDwannabe is IN Poland!

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

NDwannabe is IN Poland!

Postby ndwannabe » Sun May 23, 2010 2:12 am

I am sitting in the Frankfurt airport (6 hour layover. ugh) having a glass of red wine and am posting on TIMS.

Now, this is pathetic :lol: :lol: :lol:

But might as well start a thread that I will be updating :)
Last edited by ndwannabe on Sun May 23, 2010 5:31 pm, edited 1 time in total.
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Postby whyRwehere » Sun May 23, 2010 5:58 am

Good Luck!
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Postby hopeful2 » Sun May 23, 2010 9:31 am

I'm glad you'll be keeping us updated on how things are going! I hope everything goes smoothly:)
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Postby esta » Sun May 23, 2010 9:59 am

Good luck, it's a great experience, truly trust, the procedure works!!!!!!!!!!!!!
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Postby Rose2 » Sun May 23, 2010 10:06 am

THANK YOU FOR THE UPDATE!
Keep that wine coming! Rose ;)
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Postby hoodyup » Sun May 23, 2010 10:13 am

Good luck on your journey! Things go so fast, it'll be over before you know it. Hoping for the best possible outcome.

Andrew
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Postby simone » Sun May 23, 2010 11:50 am

Thanks for checking in. Thinking of you , wishing you ease and wellbeing and great success.
Isn't it great to be able to communicate and know you are supported in the midst of the tumult of traveling?
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Postby ndwannabe » Sun May 23, 2010 12:43 pm

Arrived at Katowice then was driven to Tychy.

The good - weather is beautiful. People that I had a pleasure to meet so far, are very nice (Raul, the driver guy and of course Kate). Hotel is nice, has all the necessities. The restaurant at the hotel is not shabby either - very good food.

The bad - the longest flight :roll: I thought I was going to drop on the floor and just lay flat for a while, no matter what anyone thinks...

Anyway, here are 4 (5?) of us scheduled to be liberated on the same day. We are staying at the same hotel Arena. Already had dinner together :)

We were each given our schedules:

Monday - MRI
Tuesday - neurological consultation
Wednesday or Thursday or Friday (yet to be decided who goes when) - Doppler
Saturday - the BIG day, stay in the hospital overnight
Sunday - discharge from the hospital
Monday - nothing scheduled
Tuesday - fly home

Suggestion from this portion of the trip - request a wheelchair assistance right from the get go, especially at the Frankfurt airport (the biggest airport I have seen, and I have seen a few)
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Postby drbart » Mon May 24, 2010 8:51 am

ndwannabe wrote:Arrived at Katowice then was driven to Tychy.

The bad - the longest flight :roll: I thought I was going to drop on the floor and just lay flat for a while, no matter what anyone thinks...



we found SFO-FRA-KRK flights with 90 min layover both ways, 14h total each way.

ndwannabe wrote:Monday - MRI
Tuesday - neurological consultation
Wednesday or Thursday or Friday (yet to be decided who goes when) - Doppler
Saturday - the BIG day, stay in the hospital overnight
Sunday - discharge from the hospital
Monday - nothing scheduled
Tuesday - fly home


why the long delay between MRI and procedure? are they sneaking doppler time or something?
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Postby ndwannabe » Mon May 24, 2010 9:27 am

drbart wrote:
ndwannabe wrote:Arrived at Katowice then was driven to Tychy.

The bad - the longest flight :roll: I thought I was going to drop on the floor and just lay flat for a while, no matter what anyone thinks...



we found SFO-FRA-KRK flights with 90 min layover both ways, 14h total each way.

ndwannabe wrote:Monday - MRI
Tuesday - neurological consultation
Wednesday or Thursday or Friday (yet to be decided who goes when) - Doppler
Saturday - the BIG day, stay in the hospital overnight
Sunday - discharge from the hospital
Monday - nothing scheduled
Tuesday - fly home


why the long delay between MRI and procedure? are they sneaking doppler time or something?


Hello Dr. Bart :)

My flight was booked on a very short notice, so had to get what I can. My flight back too has only 2hrs layover (yay!) Anyway - good for you for getting a great schedule!

As far as delays and such. See, performing the Liberation treatment is not the only occupation of Dr. Kostecki, so he schedules around 5 patients a week and no more.

Also, the clinic uses the equipment for other testings, therefore in a way "sneaking the Doppler time" is a correct statement.
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Postby ndwannabe » Mon May 24, 2010 9:32 am

Update midday May 24th.

MRI done. Pretty uneventful, except for somewhat longish drive (~40km?).

The MRI itself took less than expected (was approximated to 45min, but took about 25). Not sure if this varies from patient to patient.

Oh, at the end you are given your own copy of your scan. I was going to ask for it but did not have to :)
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Postby hopeful2 » Mon May 24, 2010 11:04 am

Good hear from you ndwannabe :) Thanks for info that you'll get a copy of the MRI scan (I was going to ask). Hope things continue smoothly for you. Do you know if your hotel has air conditioning?
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Postby drbart » Mon May 24, 2010 12:34 pm

ndwannabe wrote:Oh, at the end you are given your own copy of your scan. I was going to ask for it but did not have to :)


ooo cool!

have you looked at the data w/ osirix yet?

or heard any comment from the MR tech?
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Postby Billmeik » Mon May 24, 2010 5:13 pm

thanks for the updates
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Postby Vhoenecke » Mon May 24, 2010 6:30 pm

Hi ND I had a 2 hour layover on the way to Krakow and missed my connector, I was wishing I had taken the 6 hour wait in Frankfurt. Totally agree with the wheelchair advice. My trip was a nightmare. Had to go to Vienna then Krakow instead of direct to Krakow. Hope all is well and look forward to the updates.

Val
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