A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.


Postby seeva » Sun May 23, 2010 6:40 am

I have been liberated in sydney on 19th MAY.AT st'vincent hopital
by the DR.BESTER In my original doppler examination only i had right juguler vein was narrow but during DR. BESTER'S VENOGRAPHY examinations he founds my left and right JUGULAR VEINS ARE severe stnosis SO DR. does the angioplasty for both sides and open the both veins
no venous stents. i hope they will open permanently.
T HE DR. bester IS VERY GOOD man he expliened all during procedure. no pains at all. the nurses in the hospital were all grate. The procedure tooks only 60mins and 2hours opsavation time. by 5.00pm i am back from hospital.Intantly i had warms hands and feet
the first night i noticed my bladder controll improved as i ysed to getup atleast 5times in the night. but the first ninght i have gotup only once and had good sleep too.My balance improved slightly too.
now the second and third days my bladder system improved and my walking is also a lot stedier and my speach is much clear. all in all i nortice after procedure varying degrees of improvements
I have to wait more weeks and find out mre improvements
and i will let our TSMS members.
During ballning i have noticed big noice other than this all went without any problems.

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Postby Sharon » Sun May 23, 2010 7:00 am

Seeva -

Congtratulations! It sounds like you had a successful treatment with a positive outcome. It is always good news to here of the immediate improvements. Did you add your story to the tracking thread?

Keep posting your updates.

Be well,
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Postby PCakes » Sun May 23, 2010 9:39 am

phlebomenal!! congratulations!!!.. and in beautiful Sydney.. !!
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Diary will help

Postby MarkW » Sun May 23, 2010 1:38 pm

Hello Seeva,
Great to hear your good news. Your neuro is likely to say the change is regression to the mean or a remission period. A diary (min weekly for a year !) is the best way to explain this to the medical fraternity.
Kind regards,
Mark Walker - Oxfordshire, England. Retired Pharmacist. 16 years of study about MS.
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Postby MarkW » Sun May 23, 2010 1:39 pm

double post removed
Last edited by MarkW on Sun May 23, 2010 3:48 pm, edited 1 time in total.
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Yay Seeva!

Postby hwebb » Sun May 23, 2010 2:02 pm

Congrats Seeva! You've worked hard to find your local specialist, and get this procedure. I recall your family were hesitant for you undergoing this procedure - they are eating their words now!
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Postby Downunder » Mon May 24, 2010 7:52 pm

Well done Seeva. Because of you, Sydney is ploughing ahead!!

Are you able to get to either of the upcoming 2 events for MS?

Don't forget to ask ALL your friends for donations to CCSVI research from the coming walk on 6th June: ... +Australia
We have been promised every dollar under the CCSVI banner will go to CCSVI research.
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Postby ErikaSlovakia » Mon May 24, 2010 11:58 pm


Congtratulations! :) :) :)
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
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Postby smokey » Tue May 25, 2010 12:50 am

Wonderful news Seeva. Couldn't be more pleased for you. :D
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