help me

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

help me

Postby WOLFMAN » Tue May 25, 2010 1:02 am

I writE from Italy, I have the MSP1 from 24 years EDSS 8,5, I am tired to live and I would like to know if in Boston exists the possibility to enter in the sperimentzione for the CCSVI. I have relatives in Boston and there are not difficulty to come. Cuoghi Alberto cuog@libero.it
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Re: help me

Postby Daisy3 » Tue May 25, 2010 1:05 am

WOLFMAN wrote:I writE from Italy, I have the MSP1 from 24 years EDSS 8,5, I am tired to live and I would like to know if in Boston exists the possibility to enter in the sperimentzione for the CCSVI. I have relatives in Boston and there are not difficulty to come. Cuoghi Alberto cuog@libero.it


Why not try and contact the institute doing the research?
All the best.
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Postby 1eye » Tue May 25, 2010 6:43 am

http://www.fondazionehilarescere.org/eng/index.html

This site is not necessarily a good place to give directions, as contact information sometimes has resulted in programs being shut down. One place has decided only to accept phone calls. But there is no program that I know of in Boston yet.

Things are likely better in Italy, but there is a large trial going on in Buffalo New York and most other places are still waiting for Institutional Review Boards.

There are a few lists of places to get testing and treatment, but shutdowns happen all the time so these lists easily go out of date. I realize reading through this whole site is impossible for a 8.5 who has only English as a second language, but you may be able to get better information by sending a PM to someone from one of the sticky topics.
"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'MS' is over - if you want it
Patients sans/without patience
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Polonia per lei?

Postby BooBear » Tue May 25, 2010 7:48 am

Suggerirei ottenere il trattamento fatto in Polonia. Cerchi le informazioni sul Dott. Simka o Dott. Kostecki su questo luogo. I medici in Polonia già hanno effettuato le centinaia di queste procedure.

Perdoni prego il mio povero italiano che non mi esercito in tanto come dovrei!
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Postby colapesce » Tue May 25, 2010 11:07 am

Oppure in Bulgaria.
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Postby Emi-- » Tue May 25, 2010 12:25 pm

In Italia è tutto fermo, c'è purtroppo molto scetticismo da parte dei neurologi..io vado in Bulgaria a luglio
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Postby WOLFMAN » Wed May 26, 2010 1:29 am

Emi-- wrote:In Italia è tutto fermo, c'è purtroppo molto scetticismo da parte dei neurologi..io vado in Bulgaria a luglio


tienimi informato. ma quanto costa?
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Postby Emi-- » Wed May 26, 2010 1:37 am

costa 5000 euro (3000 x la diagnosi e 2000 x il trattamento), se vuoi metterti in lista ecco la mail: grozdinski@mail.bg

Ieri è uscita la notizia che l'11 giugno uscirà la lista dei 15 centri che diagnosticcherano la ccsvi in Italia..
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Postby WOLFMAN » Wed May 26, 2010 1:57 am

Emi-- wrote:costa 5000 euro (3000 x la diagnosi e 2000 x il trattamento), se vuoi metterti in lista ecco la mail: grozdinski@mail.bg

Ieri è uscita la notizia che l'11 giugno uscirà la lista dei 15 centri che diagnosticcherano la ccsvi in Italia..


ti ringrazio enormemente, credo che aspetterò.
di dove sei
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Postby Emi-- » Wed May 26, 2010 2:07 am

Io sono francese ma vivo da diversi anni in Italia!!
Penso che la lista dei centri uscirà sul sito del Hilarescere, cmq quando saprò qualcos'altro te lo farò sapere!
Io vado in Bulgaria i primi di luglio!
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Postby WOLFMAN » Tue Jun 01, 2010 11:53 pm

scusa il ritardo, in bocca al lupo e mi raccomando, restiamo in contatto
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