CCSVI is!! the problem!!!

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

CCSVI is!! the problem!!!

Postby powereds » Wed May 26, 2010 12:25 pm

I had the operation in Poland, nine weeks ago to this day. Long story, but I'm going back in August/September HOWEVER, my firsr visit resulted in my MS stopping, the progression I mean. Unfortunately I have a very aggressive form of the bit** and if it saved my life, what will it do to yours? the op that is.

I cannot express more strongly that having the operation has saved me from a horrible life and yes I am going back to have the second treatment, for although I have a stent in my lower left jugular vein, the larger (90/95% stenosis) was at the top of my neck and MY theory (Do not forget that I have NO! medical knowledge whatsoever) and that it was angioplastied, is that the pressure in the plane is what made it re-stenose-that is not to say that yours will, it's just the severity of my condition and what happened to me and as we all know this MS is so individualistic so what happens to me might not be the same for you HOWEVER, we all have major!!!! commonalities and blocked or malfunctioned veins or related venous malfunctions are some of them-look at the available literature/statistics.

I wish you ALL happiness!
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Postby Trish317 » Wed May 26, 2010 12:41 pm

Sending you prayers and positive energy, powereds. You just gave me something to think about regarding flying immediately following the procedure. Many people have, and they've been fine. But, I think it's a valid point to consider.
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ccsvi

Postby blossom » Wed May 26, 2010 11:56 pm

so glad to hear how well you are doing. like you say we are all so different. the best to you on this journey.
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Postby costumenastional » Thu May 27, 2010 12:04 am

Thank you for posting friend. I wish you my best and i am very happy it has worked for you.
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