blocked stent question - w a r n i n g !

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.
User avatar
shye
Family Elder
Posts: 758
Joined: Sun Nov 29, 2009 3:00 pm
Location: NYC
Contact:

Post by shye »

thanks bas for letting us know--
all best wishes with the corrective procedure!
Reytan
Family Member
Posts: 35
Joined: Wed Jan 13, 2010 3:00 pm
Contact:

Post by Reytan »

My stent was blocked two weeks post op as well. I was put on heavy blood thinners and two weeks later Doppler showed blood flow inside my stented left jugular vein.
Last edited by Reytan on Tue Apr 12, 2011 8:23 pm, edited 1 time in total.
User avatar
bas
Family Member
Posts: 29
Joined: Thu Jul 01, 2004 2:00 pm
Location: Holland
Contact:

Post by bas »

thanks for all your input.

i will keep the zinc and other stories in mind but will sort out the vein situation first.

Reyton thx for your story on your blocked stent and the good results.

we are all together in this.
User avatar
StentorKate
Getting to Know You...
Posts: 15
Joined: Wed May 19, 2010 2:00 pm
Location: Calgary, Alberta CANADA
Contact:

Post by StentorKate »

I'm very curious how long the people with blocked stents were on anticoagulants (Plavix, Warfarin , Heparin etc).
Dr. Kostecki prescribed 14 days of 60mg of Clexane once a day for 14 days, 75mg of Plavix once a day for a year and 150 mg ASA once a day for life. I've been reading other posts in the forum in which people state they are on anticoagulants for 4-8 weeks.
I wonder if this is why there are blockages? I know it takes the stent a while (I've heard 1-6 months) to be incorporated into the vein and I assume it is still rough until it has been covered by the endothelium.
This seems like a logical place for a thrombosis to start.
User avatar
drsclafani
Family Elder
Posts: 3182
Joined: Fri Mar 12, 2010 3:00 pm
Location: Brooklyn, New York
Contact:

Re: stent is for life

Post by drsclafani »

bas wrote:Well as nobody reacted so far I may presume that my blocked stent is a unique case.
I have a 10 x 1cm Medtronic stent in my rh jugular and this week it has been found to be fully blocked by clotted blood.
Been there since late March and it worked fine untill about 14 days ago, when some nasty MS symptoms came back. Hopefuly the doctors will be able to work their way through it in about a weeks time from now.

Just a word of warning: a stent is a decision for life and can not just be taken away.

When stented you need a close follow up on your blood quality and get the right medication.

You need a close follow up by a preferbly local doctor who can check up on your flow on a regular basis during the first months of a stents life.

Remember the the guy we all believe in: Zamboni, does not believe in stents himself.

I will keep you posted on results (if any)
so sorry to hear about this. please keep us informed. We need to understand how this happened and how to find the problem when the stent is only narrowed and not clotted.

were you on anticoagulation?
had you had a doppler surveillance study
where was you stent placed, both which institution and which part of your jugular?
you will no doubt have an attempt at thrombolysis to dissolve the clot, followed by angioplasty of any in-stent stenosis.

please tell us how things go
User avatar
Brainteaser
Family Elder
Posts: 460
Joined: Fri Jan 14, 2005 3:00 pm
Location: Melbourne, Australia

Post by Brainteaser »

XX
Last edited by Brainteaser on Sun Aug 10, 2014 2:49 am, edited 1 time in total.
LR1234
Family Elder
Posts: 1517
Joined: Wed Feb 11, 2009 3:00 pm
Location: California
Contact:

Post by LR1234 »

The theory of CTNVS/CTOS is based on the idea that muscles are compressing the veins/arteries and causing valve malformations.

Dr Sclafani, if you are still reading this thread please can you look into this theory as maybe CCSVI and CTNVS together can solve the MS puzzle.

Thanks for all the work you are doing, BAS I hope the dr's can sort this out for you asap.

Thansk for sharing your story Phil, How are you doing these days?

L x
Last edited by LR1234 on Sat Jun 05, 2010 5:31 am, edited 1 time in total.
User avatar
Algis
Family Elder
Posts: 829
Joined: Sat Nov 21, 2009 3:00 pm
Location: XinYi District, Taipei City, , Taiwan

Post by Algis »

400lb ?? 8O
User avatar
Pauline
Getting to Know You...
Posts: 14
Joined: Fri Dec 18, 2009 3:00 pm

Post by Pauline »

StentorKate wrote:I'm very curious how long the people with blocked stents were on anticoagulants (Plavix, Warfarin , Heparin etc).
Dr. Kostecki prescribed 14 days of 60mg of Clexane once a day for 14 days, 75mg of Plavix once a day for a year and 150 mg ASA once a day for life. I've been reading other posts in the forum in which people state they are on anticoagulants for 4-8 weeks.
I wonder if this is why there are blockages? I know it takes the stent a while (I've heard 1-6 months) to be incorporated into the vein and I assume it is still rough until it has been covered by the endothelium.
This seems like a logical place for a thrombosis to start.
After finishing with the 9 days of daily injections, Dr. Simka advised me as follows:
1. No need for blood tests, neither clopidogrel nor aspirin change the results of routine blood clotting tests; such tests are need in the patients on warfarin and similar drugs
2. 8 weeks of clopidogrel (Areplex) is enough, longer recommendations are routine in the patients with underlying vascular pathology (arteriosclerosis, for example) - not your case.....

In summary: clopidogrel + omeprazol - 8 weeks; aspirin - long-term (until a contraindication occurs)

Marian Simka
User avatar
kpw
Newbie
Posts: 2
Joined: Sun Apr 11, 2010 2:00 pm
Contact:

Post by kpw »

Thanks to Pauline for her info, but I think I'll follow Kostecki's instructions. as he's doing a research project, changing the medication and dosage might affect his results.
User avatar
kpw
Newbie
Posts: 2
Joined: Sun Apr 11, 2010 2:00 pm
Contact:

Post by kpw »

I'm kind of with KPW on this one. I assume he has prescribed this for a reason. He used to work with Simka before taking on the research project, so I'm sure he's aware of Simka and Zamboni's protocols.
User avatar
CureIous
Family Elder
Posts: 1260
Joined: Tue Jul 14, 2009 2:00 pm
Location: Riverside, CA
Contact:

Post by CureIous »

Most of us Stanforders (leaving some wiggle room for error there) were on various forms of anti-coagulants until our follow up scans 2 months post-op. On mine you could clearly see the stent surrounded by endothelial lining, so no more anti-c's.

I've wondered a bit when people say they got sent home with no thinning regimen as this seems to be s.o.p. for stents of any variety.

I know the cocktail changed over time but for me it was warfarin/coumadin and plavix for month one then warfarin for month following then follow up scan then aspirin daily.

Just to reiterate what's been discussed on here frequently, the difference between the plavix and warfarin, is that plavix makes your platelets nice and slippery just like aspirin but a much higher factor. Warfarin works on your blod clotting factors in the liver and reduces them that way. Put the two together, you'll have some pretty slick stuff in your veins. I know in Europe and elsewhere they have many different varieties of thinners.

So just to keep in mind that there are two different things at play with these meds, some meds make stuff slippery, some alter your blood chemistry/coagulation/Vitamin K factors at the source.

Mark.
RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video: http://www.youtube.com/watch?v=cwc6QlLVtko, Virtually symptom free since, no relap
User avatar
shye
Family Elder
Posts: 758
Joined: Sun Nov 29, 2009 3:00 pm
Location: NYC
Contact:

Post by shye »

where are you bas?
Hope all is okay--
Please let us know how things went with the attempt to relieve the stent problem--
User avatar
bas
Family Member
Posts: 29
Joined: Thu Jul 01, 2004 2:00 pm
Location: Holland
Contact:

blocked stent now open

Post by bas »

Ok here we go.

Just a short history rehearsel first: was checked for ccsvi in Katowice late March where both jugular veins turned out to be almost non existent. Zero flow in the far too narrow jugs.

Righthand jug could be opened up but collapsed almost immediately so was stented with a 10 X 1 cm Medtronic stent. Left jug could not be approached from inside so an attempt as made to get in through the outside of my neck. A small cut was made to get acces. Pretty painfull but just bearable. They had to stop this action after 2 hours in the ops theater because of excessive bleeding.

So went home with the advice to return for another attempt in 2 month time. I was prescribed Fraxiparine 0,6 ml once a day for 7 days, Clopidogrel 0,075 daily for a year and life long Aspirin.

Positive experiences were the "usual" improved blood flow in hands and feet, no more blue toes. Legs much less spastic and much less pain from the "MS hug" which was a big releave.

A while later it turned out that a hospital nearer my home was starting ccsvi treatment so I decided to see if they might be able to open the left jug which seemed more attractive then another journey to Poland.

By the time I had my appoiment there my spasm and pain were back just as my cold hands etc. Dr Roel Beelen quickly established that the stent in my right jug had no flow at all. It was just filled with clotted blood......

I am now happy to report that 2 days ago the stent was succesfully opened up. It turned out to be quite a job which needed more time and tools then estimated. The loosened debri was sucked away on the spot.

After the stent was opened up and the flow restored he had a succesfull go at my left jugular. Now have a flow of 200 ( 200 what ? ) on both sides.

There wil be a close follow up as he will see me by the end of the month. Medication for the time being: Fraxiparine 6 ml twice a day.

I will keep you posted.
User avatar
Algis
Family Elder
Posts: 829
Joined: Sat Nov 21, 2009 3:00 pm
Location: XinYi District, Taipei City, , Taiwan

Post by Algis »

I am now happy to report that 2 days ago the stent was succesfully opened up. It turned out to be quite a job which needed more time and tools then estimated. The loosened debri was sucked away on the spot.
And did the improvements came back?

Thank you for sharing :)
Post Reply
  • Similar Topics
    Replies
    Views
    Last post

Return to “Chronic Cerebrospinal Venous Insufficiency (CCSVI)”