Thank you all so much for all your nice wishes! Last night slept like a baby and woke up with lots of sunny energy - I was looking forward to leave for Krakow for sight-seeing with Canadian friends today and it was more than lovely!
A funny thing I wanted to share with you! The neurologist with whom we all had a follow-up meeting in our rooms the following afternoon of the procedure told us all: that the improvements we would feel immediately would be very nice but all be placebo effect
. That he would be so happy for us if we already feel better with some slight improvements, but that the real ones were to be expected in 1-3 months to come!
Oh well, at least he encouraged us! I had actually a very constructive discussion with him, the best I ever had with a neurologist although he excused himself on certain view-points, as that CCSVI not proven unless clinical trials will prove, and that I HAD to understand that he HAD to see it like this from his neurologist viewpoint...but he then understood that I also HAD to see it the other way round from my MS patient viewpoint
He admitted when raised some examples that also on basis of auto-immune neurology not everything could be explained yet on processes of remission...and that one does not exclude the other, that MS is progressive and we have little time to loose to wait for another 5 years of research. In addition when said, "Common, you see the procedures that have been done here already on 500 people, and see they are simple and no way dangerous - so thank you for giving us this chance!" he was, yes, really nodding silently...
I saw him even a bit moved when he left from my room. I was the last one he talked to I think - after his day of talking to all these convinced CCSVI MS patients the day after the procedure (at dinner afterwards some others told me they had put forward similar arguments to him, well we are all well TIMS or otherwise common-sense trained
...and he had in particular seen my friend standing up before him (she told me afterwards he was quite impressed when she suddenly stood up before him - surprise! And I also showed him my video that I had done of her getting up all alone and walking slowly without crutches in the morning directly after the procedure)
...that he admitted certain things that have only been stubborn blocks for other neurologists/doctors talked to was very positive for me! Well I guess there is a reason why he agreed to cooperate in the Euromedic research, but still you see, still not really convinced... seems to be really difficult for them...