PCakes wrote:I am somewhat new to the MS world. The media and the neurological community continually analogize CCSVI to 'bee stings in Mexico' and 'hyperbolic chambers in Florida' ? Is there a nutshell comparison of the reaction in the MS world to CCSVI and these supposed treatments.?. the degree of plausible of CCSVI is very high.. from the lay perspect "it just makes sense" (nothing scientific there.. is my feeling) Was the reaction to the others as high? Was there a placebo response in these cases? and was it comparible to the amazing results we see now?
cah wrote:I just googled "MS bee sting therapy" and looked at the results for just a few minutes. I think what I saw is what neurologists want the CCSVI-treatment to end up. Nothing proven yet, pro and anti-positions, anectdotal reports of benefits, has generated some buzz, followed by some small preliminary studies, experimental/alternative therapy, nothing proven yet...
The main difference I think is that this is said to be a therapy for the symptoms only from the beginning. Interesting: "It is also used for a number of other diseases and conditions, including depression, skin conditions, menstrual cramps and varicose veins.
But maybe I'm wrong and it is already disproven.
Stacemeh wrote:On a brief glance at the main first page of the forums there are more that 40,000 posts re: CCSVI while the most other topics do not exceed 4,000. Things like bee stings and hyperbaric chambers don't even seem to rate their own heading.
cheerleader wrote:What makes CCSVI different is that it is not about "cure"--it is about disease mechanism. Whether or not it is the 100% answer of the process of MS--it is looking like a large part of the disease.
The "cures" mentioned as bogus: hyperbaric oxygen, low fat diets, bee stings, snake venom, etc--all affect the vascular system. Which is probably why MS patents find symptom relief using these methods.
Dr. Swank saw that a low fat diet helped his patients remain in remission--in the CCSVI paradigm, that would be because saturated fats create endothelial disfunction, inflammation and hypercoagulation. The brain is oxygen deprived in CCSVI--which seems to be why patients would have temporary relief using H-bot. And venoms and bee stings provide temporary vasodilation: an opening of the blood vessels. Which makes sense if you're vessels are narrowed.
It is hard to cure a disease if you don't know what causes it. CCSVI is a medical condition, not a cure.
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