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A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

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Postby NZer1 » Mon May 31, 2010 1:24 pm ... newsletter

Survey Gathers Information to Help Develop Doctors’ Programs on MS Care – Help doctors to create better programs and treatments for MS patients by taking a short survey. I understand Johns Hopkins would like to know the answers to some questions.

To participate in the survey go to:
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Postby fogdweller » Tue Jun 01, 2010 10:29 am


Did Squeakycat ever get her survey finished and up and running? She was going to post it on the web. do you have an address?
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Postby BooBear » Tue Jun 01, 2010 10:48 am

Three veins angioplastied.  One renewed life.  
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Postby AlmostClever » Tue Jun 01, 2010 4:20 pm

If you can't explain it simply, you don't understand it well enough. - Al Einstein
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Postby jr5646 » Tue Jun 01, 2010 4:46 pm


I doubt it very much if neuro's will take much, if any of this information seriously.. worth a shot tho.
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Postby Fernie12 » Wed Jun 02, 2010 10:10 am

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Postby Mavrek » Tue Jun 15, 2010 1:46 pm

let's hope they don't say " we don't know "
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Postby L » Tue Jun 15, 2010 1:52 pm

me too..
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Postby belsadie » Wed Jun 16, 2010 4:58 am

According to an acquaintance of mine who is a patient of Peter Calabrese down at Hopkins, they're pulling out of the ultrasound study they'd planned to do. Not enough validation of Dr. Z's findings in Italy - duplication of his results-- and the conviction that this is not the way to go........
He's an advocate for Tysabri........
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Postby mohzi » Wed Jun 16, 2010 5:18 am

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