Thanks for the message Zeureka!
Had the eye test this morning and I have "nothing to worry about", so they said. All 'green', and no problems with nerve damage. So all that double/blurry vision may not have been optic neuritis. I feel very lucky, as some of the other patients had loads of 'red' areas on their scan printouts.
Then the MRV this afternoon. Well the MRI machine seems even louder in Poland! And made by General Electric. Boo! But it gives out some pretty cool synth noises that I amused myself by beatboxing along to! I reckon I'd quite like to sample some MRI noises and record an industrial techno record! And of course I slammed the CD-rom they gave me straight into my laptop to study the images when I got back to the hotel, and guess what I found... I found I don't have a bloody clue how to diagnose CCSVI! So I'm going to leave it to the docs tomorrow.
And it's really hot here in Katowice. 35 on Friday, some are saying.
The other patients have been great; some really, really nice people from all over, and great to exchange information with. I was having conversations in the queue for the MRV today and some are wary of stenting, worried about restenosis etc. (this is after all still an experiment)... totally different from all the guys I met in the bar last night who were all 'fired up' to go for anything the doctors said. In fact I'm sending those guys (including mtf and Johnson) positive vibes as I type as they'll be under the knife around now.
Can I give any good advice to anyone waiting to come out here? Well, it's all really well run, so there's nothing you need to worry about. But here's one thing I've been thinking... Simka mentioned in his reply to Esta that restenosis may be due in part to the air travel (changing pressures etc.). A Danish guy I spoke to today, whose wife is here for the procedure, was telling me that they have already been to New York where she had balooning. She felt amazing for the rest of the trip (a few days), then all her symptoms returned after the flight. So they're driving back to Denmark. I am seriously considering giving up my airline ticket and getting the train/boat home so as not to risk undoing the work done in the procedure (if they can do it). Having already spent a lot of money on this, it seems a bit more might be worth it, to make sure I get home unscathed. Plus, me and my girlfriend are now thinking a train journey across Europe might be a bit of a laugh...
My view is that the after-care you give yourself must be so important to 'seal the deal'. No smoking, low sat fat diet, IBT, Omega 3s etc, etc. I don't think it would be wise to have it done and then return to a life of debauchery (if that's your thing - it was mine
Oh and anyone on a strict diet (like me) can rest assured there's loads of salad, fruit, fish etc. for breakfast at the hotel, and we found a decent vegetarian restaurant in town which is really cheap too. And if you can learn how to say "do you speak English" in Polish (like I did, thanks to my Polish students), the locals (at least one of whom per shop, cafe etc.) seem to be appreciative and I think give you a slightly better service! It goes something like this (phonetically): ch-rozmovi-ash-po-angielsku? (said quickly and with a hard 'g' in the last word).
Anyway, it's all about tomorrow now... hopefully I'll be able to sleep tonight. I'll let you know what happens as soon as I can.