June 1 Toronto - Subcommittee Neurological Disease - AUDIO

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June 1 Toronto - Subcommittee Neurological Disease - AUDIO

Postby PCakes » Tue Jun 01, 2010 9:07 am

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Postby dlb » Tue Jun 01, 2010 10:06 am

Hi PCakes,

This sounds soooo interesting but I can't open anything. I have a mac, maybe that is why??? Anywhere else I can go to watch this, or read it?? Thanks...
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Postby FlashHack » Tue Jun 01, 2010 10:24 am

Okay, I'm not Canadian, but I do know an a-hole when I hear him and monsieur Malo definitely fits the description. Good grief!
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Postby ozarkcanoer » Tue Jun 01, 2010 10:34 am

Hmmmm.... I can't seem to hear the audio feed. It just sits there.

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Postby FlashHack » Tue Jun 01, 2010 10:36 am

It had to play through several minutes of silence before I heard anything.
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Postby PCakes » Tue Jun 01, 2010 10:44 am

Hi dlb.. this is the facebook link.. sorry i no know the how to's of 'mac'..
http://www.facebook.com/note.php?note_i ... 317&ref=mf

and yes..there is a long pause of silence before the audio begins..
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Postby SandyK » Tue Jun 01, 2010 10:46 am

That was great! Thank you for posting this.
Diagnosed 1994, Self EDSS is 6.5
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Postby FlashHack » Tue Jun 01, 2010 11:33 am

Just finished listening to the whole thing. So much talking and so little action. Now they have scheduled Dr. Zamboni to come on June 15th so they can talk some more!?

The most ironic part is Dr. Duncan was not allowed to put forth any motions because the committee had "run out of time." Were they not listening when they were told that MS patients are running out of time?
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Postby ozarkcanoer » Tue Jun 01, 2010 11:57 am

After the initial pause I listened to the whole recording of the committee meeting. Thanks for posting this link. I hope that Canada is proactive on this. They should at least allow private clinics to do the procedure if nothing else. It was very moving.

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Postby cheerleader » Tue Jun 01, 2010 12:03 pm

Flash---at least they are talking, and listening and hearing some evidence from doctors and patients. The MS world in the states is mostly silent. I found the testimony incredibly moving and Dr. McDonald was once again articulate and on point. Good to hear Dr. Haacke, and the patient testimonies had me weeping. (Make sure you have kleenex at hand when listening. Just saying.)
cheer
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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Postby FlashHack » Tue Jun 01, 2010 12:27 pm

Cheer,
I hear you, but the old saying still applies, "talk is cheap." I am less a man of action than I was 5 years ago, but I still get irritated by endless discussion.

When the history books are written, no one will remember Luc Malo's valiant defense of Canadian bi-lingual protocol. Sandy McDonald, however, will be remembered long after these nameless legislators have passed into obscurity.
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Postby PCakes » Tue Jun 01, 2010 2:54 pm

Hey Flash..you are not wrong.. it is painful..but what you are witnessing is the Canadian political system in 'action'. Every step is necessary.
Cheerleader is correct..they are talking and they are listening.. this is critical..
CCSVI awareness is rising to the surface and starting to spread out. This is very exciting!
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Postby NormB » Tue Jun 01, 2010 5:00 pm

Greetings,
Will there be a written version of this meet?



Thank You and take care all.

Norm
'92 diag RR - '05 SP
On LDN since Sept. 2012 with better quality of life.
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Postby sonia52 » Tue Jun 01, 2010 7:22 pm

Norm, there are always written versions in both languages for these meetings. There will be available in a couple of days.

This meeting was the 6th one. Click on the sheet under Témoignages (for the text in French) when the x will be replaced by a sheet on the same line than Réunion 6.

http://www2.parl.gc.ca/committeebusines ... 01SMNDMEE6

In English, same addres and same instructions

http://www2.parl.gc.ca/committeebusines ... 25SMNDMEE5
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Cut and paste this link to your MP and MLA

Postby Brightspot » Tue Jun 01, 2010 9:08 pm

I have sent this link to my MLA and Member of Parliament, (along with a note indicating that there are a few moments of silence at the beginning of the audio) asking them to take the time to listen to it and to take action.

I suggest every Canadian send the link to their polictical representatives along with a plea to listen to it and to take action.

Find your Member of Parliament here:

http://www2.parl.gc.ca/Parlinfo/Compila ... x?Menu=HOC

Find your MLA in BC here http://www.leg.bc.ca/Mla/3-1-1.htm

Also letters of support to the committee members and the persons who testified would be appropriate!!

Go Canadians!

(Flash and others you may want to send the link to politicians and decision makers and members of the press in your countries too!)
Last edited by Brightspot on Tue Jun 01, 2010 9:26 pm, edited 1 time in total.
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