Do you know any MS patient (preferably with CCSVI) who was first diagnosed with Transverse Myelitis?
I got Transverse Myelitis (TM) in Dec 2008. I was diagnosed with CCSVI and had a balloon angioplasty two months ago.
My TM symptoms have very much improved since then. I no longer have daily headaches or fatigue. My spasms and hypersensitivity have gradually faded away.
All my MRIs show that I have TM and not MS. Fact that makes me believe TM might also be linked to CCSVI.
TM is a similar condition to MS, except that demyelination occurs only at one point in the spinal cord and not in the brain. Although, TM symptoms can be very similar to those of MS.
TM patients can develop MS. Medical literature is unclear about the exact risk of developing MS but some studies suggests that the risk ranges from 15% to 80%.
I've informed all the doctors involved in CCSVI trials about my case. To make the link between TM and CCSVI clearer, I'm looking for MS with CCSVI patients who might have been first diagnosed with TM and later on developed MS.
Your help will be very much appreciated
You can find more about my case at: