I also have the numerous brain lesions (but no spinal lesions)--the radiologist reading the MRI concluded could be microvascular problem, or demyelinating disease. My ostseopathic dr ran all the cardivascular tests on me after the MRI, and all was perfectly okay. NeuroOpthalmologist says is MS.
Neurologist also said "could" be MS, but "could" be microvascular--yet he said we have lots of medicines, come back when your symptoms are a bit worse, we can then help you--and he is head of prominent MS clinic in NY--so clearly he was thinking MS (and he has since shown he is not a fan of CCSVI).
--but interestingly, my MRI and his observations about my lesions were prior to CCSVI hitting the news-- I see the radiologist's report as pretty much saying MS is CCSVI---that is rather, the symptoms we call MS, since NO ONE knows what MS is!
Then, a bit later, I was helped SO incredibly by Chiropractor adjusting the Atlas--just confirmed to me that CCSVI theory probably valid, but don't always need venoplasty to help correct it--I have had a number of severe head and neck injuries, going back years.
I am not "cured", but doing so incredibly much better: Makes me think so very much is unknown still, even with CCSVI, and that we get catagorized too easily into slots, and then of course any thoughts that something else could be going on just stops.
So, at least now you are on a path of more possiblities--a good thing I think.
I have seen many of your posts, and identify a lot with what is happening to you--please keep us posted. I am especially interested because I have the numerous lesions also. I immediately stopped seeing neurologists--i was to go back with the medical records from my Optic Neuritis, and knew from what the Drs said that they would then officially make it MS---I did not want to be frozen into a (possibly wrong) catagory, or pushed into using meds. At any point that I might find I need their services, will just make an appt and bring the ON info with me. Instead, for now, am using lots of alternative healing modalities, including Inclined Bed Therapy, EDTA chelation, chiropractor, diet, B12 shots, nutritional supplements-- and keeping many of the worst symptoms I read about here at bay--worst is the underlying fatique--never really get rid of that.
But in my searchs for answers did just find I am heterozygous for H63D mutation--and my osteopathic doctor has for a long time felt I had porphyria, but tests were always inconclusive--I now see that Hemachromatosis and porphyria often hand-in-hand, and this could explain a lot of "MS" symptoms. Am now going to explore both these diseases with specialists.
So, who knows where the numerous lesions are from--I am at this point not willing to label, will just keep looking for any possibilities, and work on each to see how much contributing to what has been happening to my body for years now, and how much this new knowledge i keep getting gives me insights to help the healing.
Anyway, all best wishes! and please keep posting--thanks