Fabulous Festa Fundraiser for CCSVI in Seattle June 27th

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby SandyK » Sat Jun 19, 2010 7:58 pm

Thanks to pegmegrund I am going, as well!
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Postby SammyJo » Sun Jun 20, 2010 8:40 pm

Great video Pam!

Denise Graff from New Jersey is also planning to come to the event. Now there will be 5 CCSVI-ers attending: Janet (from Montana), SammyJo, Katheen, Marie, Denise, Pam.
RRMS '95 SPMS '02 | CCSVI 10/09 | Adult stem cells 2012 | http://www.patientsforstemcells.org/
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Postby pegmegrund » Sun Jun 20, 2010 10:00 pm

SammyJo wrote:Great video Pam!

Denise Graff from New Jersey is also planning to come to the event. Now there will be 5 CCSVI-ers attending: Janet (from Montana), SammyJo, Katheen, Marie, Denise, Pam.

Thanks, SammyJo! I'm sort of the odd-girl-out in this group! :lol: My BNAC reports show evidence of vein issues but I haven't had the procedure yet!

By the way, I've matched several local folks with sponsors to attend the party. Thanks to all involved. It's a great feeling. I could use another sponsor for 1 ticket. Send me a pm if you're interested. Thanks!
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"Last Call"

Postby pegmegrund » Thu Jun 24, 2010 6:40 am

“Last Call”… for the signature drink “Wheelchair Kamikaze”.

What’s that? Haven’t heard of it? Come and try it at the party! Call now to reserve your tickets: 206-443-3241.

Jackie Roberts has a wonderful party planned for us at The Pink Door on Sunday.

As mentioned above, proceeds go to BNAC for CCSVI research!

If you can't attend, here’s a link to donate online: http://msterypartyccsvi.bnac.net/DiRobe ... k_door.php

And here's the Pink Door website:
http://www.thepinkdoor.net/events.html

See you there!
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Party report!

Postby pegmegrund » Sat Jul 03, 2010 6:06 pm

In case you're wondering what a Pink Door party is like, I've blogged about the party:

http://theplacespamgoes.blogspot.com/20 ... -door.html

It was quite the event...
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