Fabulous Festa Fundraiser for CCSVI in Seattle June 27th

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Fabulous Festa Fundraiser for CCSVI in Seattle June 27th

Postby cheerleader » Thu Jun 03, 2010 2:45 pm

http://www.thepinkdoor.net/

SEATTLE – The Pink Door is throwing a Festa per la Salute! or “Party for Health” to help solve the mystery of Multiple Sclerosis (MS), a chronic and often disabling disease that attacks the central nervous system, which may include a condition called Chronic Cerebrospinal Venous Insufficiency, or CCSVI.

The Pink Door owner Jacqueline Roberts, recently diagnosed with this complex and unpredictable disease is personally committed to furthering the education and research of CCSVI as it relates to Multiple Sclerosis.

Festa Per La Salute! will feature a sumptuous feast of fresh Northwest seafood, Pink Door Lasagne, grilled veggies and over flowing wines… along with The Pink Door’s usual cacophony of trapeze artists, jazz musicians, accordions, modern dancers, prosciutto slicers and bodacious beauties passing oysters… and of course those beautiful views of Elliott Bay from the deck.

Roberts has pledged 70 percent of all proceeds from the event to the University at Buffalo Neuroimaging Analysis Center (BNAC) and its groundbreaking MS -CCSVI research.

Sunday, June 27, 2010
5 p.m. - 9 p.m.

THE PINK DOOR, 1919 Post Alley, Seattle

COST: $100.00 per person. Additional donations for research very welcome and much appreciated!

TICKETS: Tickets must be purchased in advance by phone at 206.443.3241
or in person at The Pink Door by Friday June 25, 2010


Representatives from the University at Buffalo will be at The Pink Door to discuss their studies of the possibility that symptoms of MS result from the narrowing of the primary veins outside the skull, a condition called Chronic Cerebrospinal Venous Insufficiency, or CCSVI. The BNAC’s 1,700-person research study will verify Dr. Paolo Zamboni's ground-breaking CCSVI theory on which he based his balloon angioplasty procedure to treat venous constriction. Dr. Zamboni has found that the majority of his patients experienced a decrease in MS symptoms. In fact, Zamboni’s wife, who had MS for 17 years, is free of symptoms four years after treatment.

To learn more about BNAC and MS research, please visit http://www.bnac.net/.

About The Pink Door
In 1981, a whimsically inclined twenty-something Italian American ingénue put her creative hooks and inspiration from travels abroad into a surreal cellar of a space that became equal parts Bohemian loft, Trattoria, and Pigalle cabaret. “La Padrona” Jacqueline Roberts wasted no time filling the space with nuances, a seasonally changing menu of hearty, honest Italian food and wine, spirited service, and eccentric alluring entertainment. Some twenty seven years later, The Pink Door (http://www.thepinkdoor.net/) remains a Seattle favorite with a fresh, constantly changing seasonal menu and eclectic nightly entertainment.
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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Postby pegmegrund » Thu Jun 03, 2010 5:03 pm

I'm going! This should be a fun party. If anyone else from TiMS is going, please send me a pm. Would love to meet in person!

Please check out my newest blog post with other ways to support BNAC - if you're not in Seattle, or would like to contribute a different amount, here are the details:

http://theplacespamgoes.blogspot.com/
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Postby ozarkcanoer » Thu Jun 03, 2010 7:40 pm

Anybody can donate to any MStery party !! If you can't attend a party consider being a virtual guest. Give up that extra large mocha latte for one day and donate $10.00. Or better yet, give up the fancy coffee for a week (or those cocktails or beer, LOL) and donate $25.00. Help BNAC with their research.

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Postby cheerleader » Tue Jun 08, 2010 1:05 pm

Here's a wonderful article on the fund raiser in the Seattle Times....it sounds like an incredible evening is planned....

The Pink Door

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Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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Postby SammyJo » Fri Jun 11, 2010 11:15 am

Doug and I will be there!
I live in the Seattle area, Jackie called me and invited me to the event.
RRMS '95 SPMS '02 | CCSVI 10/09 | Adult stem cells 2012 | http://www.patientsforstemcells.org/
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Postby ozarkcanoer » Fri Jun 11, 2010 11:22 am

SammyJo and Pam,

See if you can get a picture of the two of you at the party !! It would be fun for those of us who can't attend to see both of your smiling faces together !!

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Postby pegmegrund » Fri Jun 11, 2010 11:54 pm

Hi OC - We'll be taking lots of pictures, and I'll be sure to meet SammyJo!

I'm so disappointed that BNAC didn't get funding from the NMSS. Now is the time so show our support for organizations such as BNAC who are studying CCSVI. Remember, BNAC also has a treatment study in the works.

If you're in Seattle, support Jackie and The Pink Door by attending the party! I've got my tickets! Have you bought yours? :)
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Me too!

Postby rheaume76 » Sun Jun 13, 2010 6:51 pm

I will be at the Pink Door, too! Can't wait to meet all of you. This will be my first ever MS-related event. I was diagnosed with RRMS just a month ago and I have been attentively following all things CCSVI. I also have plans for Liberation this Autumn in Scotland. I can't wait!
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Postby SammyJo » Mon Jun 14, 2010 3:58 pm

rheaume76 - Welcome!
Great you are coming to Pink Door too :-)
I am so happy that the newly diagnosed are hearing about CCSVI, since there is so much activity on the net. People won't have to become disabled anymore.

Dr Gilhooly in Scotland has been a long term supporter of alternative MS terhapies, like LDN. It is great to see him embrace CCSVI, he even has the custom Zamboni doppler. You will be in good hands.
RRMS '95 SPMS '02 | CCSVI 10/09 | Adult stem cells 2012 | http://www.patientsforstemcells.org/
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Thank you!

Postby rheaume76 » Mon Jun 14, 2010 9:24 pm

Thank you so much, SammyJo! I am a research-based nonfiction writer, so I had a plan all laid out before I even got the *official* diagnosis! How is that for planning ahead?! :wink: (I should say that I am an obsessive researcher.) When I was diagnosed, I asked my Dr what he thought about the CCSVI theory and he said that he was at a conference recently and all of the "top" neurologists in the country were calling CCSVI into question, saying that Zamboni's research was flawed, yattity, yattity... My response was, "But don't you think that those doctors are just invested in their own theories, which they've been researching for years? I mean, it's only human nature..." He leaned back in his chair, thought for a moment, smiled widely and said, "Point taken!" That was the moment that I knew I could work with him.

I'm excited about meeting you and all of the other folks that are involved in this movement. I am also excited to hear that Dr Gihooly is so awesome! I feel pretty good about everything and I'm looking forward to shutting down this electrical storm in my body before it gets worse.

Have a great night!
Danielle

p.s. I already have a venous malformation in my foot. I was born with it, so when I heard about CCSVI, it only made sense. Screwy veins can cause a lot of problems. I've had at least 20 foot surgeries on my foot in the past few years. At the party I am going to endeavor in wearing some heels... we shall see how that goes!
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Re: Me too!

Postby pegmegrund » Mon Jun 14, 2010 9:41 pm

rheaume76 wrote:This will be my first ever MS-related event.

I've been to quite a few MS events around the Seattle area, and I have a feeling that this one won't compare in any way, shape or form! The other ones may seem a bit boring after this one! :lol:

I look forward to meeting you there, Danielle!
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Postby pegmegrund » Wed Jun 16, 2010 6:56 am

I'm matchmaking! If you would like to sponsor someone to attend in your place at the party at The Pink Door, please pm me. If you'd like to be sponsored let me know.

I'd like to match up people who would like to donate but can't attend (or live too far away) with people who want to attend. Send me a pm and I'll coordinate the details. I've offered to coordinate this as Jackie and her staff are busy getting ready for the party.

Let's support this great event in all creative ways possible! Thanks, SammyJo, for the idea! :)
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Postby pegmegrund » Fri Jun 18, 2010 11:34 pm

OK - including this, the last three posts are mine! :lol: :lol:

Anyone? Anyone?

Please join me in Seattle on June 27:
http://www.youtube.com/watch?v=JBa8FdfQhdc

Can't attend? You can help by sharing this video with others, or sending a donation (details in the video, or earlier in this thread).

I'm still 'matchmaking' so if you'd like to sponsor someone, or be sponsored, send me a pm.
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Postby mrhodes40 » Sat Jun 19, 2010 9:54 am

I'm going..........
:D
marie
I'm not offering medical advice, I am just a patient too! Talk to your doctor about what is best for you...
http://www.thisisms.com/ftopic-7318-0.html This is my regimen thread
http://www.ccsvibook.com Read my book published by McFarland Health topics
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Postby pegmegrund » Sat Jun 19, 2010 5:59 pm

mrhodes40 wrote:I'm going..........
:D
marie

Great! I'm looking forward to meeting you!
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