VENOPLASTY FOR PPMS

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby JCB » Sat Jun 26, 2010 8:58 pm

Diagnosed 11/07 PPMS, Looking back now I wonder if I had MS symptoms prior. You know that "hind sight" thing. I was doing a Triathlon in 2001, during the last 3.1K of the 10K run I started tripping on my right toes. Chalked it up to not training enough (which was true).

In '07 I was playing racketball a couple mornings a week before work. The first game was fine, second game I could tell my right side was not as responsive, third game the ball would go by and then I would swing. Thought it was Diabetic Neuropathy, no such luck, PPMS diagnosis. I can still walk with a brace, but do just about everything with my left hand now. Am on a waiting list(s) and am hoping for treatment this Fall.

From all the post here I would have to agree with MSHusband on the different types and classifications of this monster. The only thing I would add to his formula is "injury" which could have an affect on "time". I've had lots of neck injuries and fractured my lower back a number of years ago.

Still a believer that CCSVI is going to take us places that the Neurologists don't want to go.
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Postby Trish317 » Sat Jun 26, 2010 9:07 pm

JCB wrote:Diagnosed 11/07 PPMS, Looking back now I wonder if I had MS symptoms prior. You know that "hind sight" thing. I was doing a Triathlon in 2001, during the last 3.1K of the 10K run I started tripping on my right toes. Chalked it up to not training enough (which was true).

In '07 I was playing racketball a couple mornings a week before work. The first game was fine, second game I could tell my right side was not as responsive, third game the ball would go by and then I would swing. Thought it was Diabetic Neuropathy, no such luck, PPMS diagnosis. I can still walk with a brace, but do just about everything with my left hand now. Am on a waiting list(s) and am hoping for treatment this Fall.

From all the post here I would have to agree with MSHusband on the different types and classifications of this monster. The only thing I would add to his formula is "injury" which could have an affect on "time". I've had lots of neck injuries and fractured my lower back a number of years ago.

Still a believer that CCSVI is going to take us places that the Neurologists don't want to go.


I may be wrong but it seems that many people diagnosed with PPMS have sustained some kind of back and/or neck trauma.
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Postby colmmc » Sat Jun 26, 2010 11:44 pm

OK here go's
Dx 2oo7 PPMS but looking back I would say 14 /15 years
main problems Foot Drop,Heat intolerance,left hand curled up and weak.
and the big one fatigue.plus a few other issues I'm sure you know what I mean!
I had 1 stent and one balloning.
The first thing I noticed was everything looks sharper more in focus Before I was not aware my world was a bit blured and dull. The warm foot thing was there,This is still only day three but I'm not fatigued yet ( my wife is still in bed I've been up an hour, and not because of pain )my left hand is still weak but has straighten out.
This has just come to me, that pain I had and found hard to discribe has gone.Balance is better. So many little thing it's hard to covey them all.
But the big thing is I feel better not fixed but a whole lot better.

I've been Liberated.

Colmmc.
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Postby Trish317 » Sat Jun 26, 2010 11:56 pm

colmmc wrote:OK here go's
Dx 2oo7 PPMS but looking back I would say 14 /15 years
main problems Foot Drop,Heat intolerance,left hand curled up and weak.
and the big one fatigue.plus a few other issues I'm sure you know what I mean!
I had 1 stent and one balloning.
The first thing I noticed was everything looks sharper more in focus Before I was not aware my world was a bit blured and dull. The warm foot thing was there,This is still only day three but I'm not fatigued yet ( my wife is still in bed I've been up an hour, and not because of pain )my left hand is still weak but has straighten out.
This has just come to me, that pain I had and found hard to discribe has gone.Balance is better. So many little thing it's hard to covey them all.
But the big thing is I feel better not fixed but a whole lot better.

I've been Liberated.

Colmmc.


My darling man was also diagnosed PPMS in 2007. I'm so happy for you, Colmmc. And very encouraged to know that those improvements are possible for someone with a progressive form of MS.

I hope you continue to see more and more improvements!
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Postby eveable » Sun Jun 27, 2010 7:42 pm

Might I add, because I am so sick of these labels, that MS is progressive.
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Postby Fernie12 » Wed Aug 04, 2010 7:02 pm

I was diagnosed with PPMS in January, 2008. I have numbness in my feet/lower legs, bladder issues, crazy fatigue in my legs and recently some short term memory issues. I underwent angioplasty only a couple of days ago - no changes yet - but was kinda surprised when the dr. found no stenosis in my aszygous... I guess I just was expecting it! I did have an occlusion in my left jugular and a small narrowing in my right. Both jugulars were ballooned successfully.

Anyone else have PPMS and no stenosis in the Azy? Thanks!
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Postby garyak » Wed Aug 04, 2010 7:58 pm

I expect to have my results from Hubbard's clinic in a week or so and will let you know how my azygous looked-ppms here.
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