JCB wrote:Diagnosed 11/07 PPMS, Looking back now I wonder if I had MS symptoms prior. You know that "hind sight" thing. I was doing a Triathlon in 2001, during the last 3.1K of the 10K run I started tripping on my right toes. Chalked it up to not training enough (which was true).
In '07 I was playing racketball a couple mornings a week before work. The first game was fine, second game I could tell my right side was not as responsive, third game the ball would go by and then I would swing. Thought it was Diabetic Neuropathy, no such luck, PPMS diagnosis. I can still walk with a brace, but do just about everything with my left hand now. Am on a waiting list(s) and am hoping for treatment this Fall.
From all the post here I would have to agree with MSHusband on the different types and classifications of this monster. The only thing I would add to his formula is "injury" which could have an affect on "time". I've had lots of neck injuries and fractured my lower back a number of years ago.
Still a believer that CCSVI is going to take us places that the Neurologists don't want to go.
colmmc wrote:OK here go's
Dx 2oo7 PPMS but looking back I would say 14 /15 years
main problems Foot Drop,Heat intolerance,left hand curled up and weak.
and the big one fatigue.plus a few other issues I'm sure you know what I mean!
I had 1 stent and one balloning.
The first thing I noticed was everything looks sharper more in focus Before I was not aware my world was a bit blured and dull. The warm foot thing was there,This is still only day three but I'm not fatigued yet ( my wife is still in bed I've been up an hour, and not because of pain )my left hand is still weak but has straighten out.
This has just come to me, that pain I had and found hard to discribe has gone.Balance is better. So many little thing it's hard to covey them all.
But the big thing is I feel better not fixed but a whole lot better.
I've been Liberated.
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