Any people who have RPMS have CCSVI done?

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby Cece » Mon Jun 07, 2010 4:07 pm

mmcc wrote:
mshusband wrote:MMCC - your daughter had the procedure at Georgetown and now you're having it at Georgetown?

Any report from her?

It has been 12 days and for the first time (8 years) she is actually improving. We ar very excited - no drug has helped her. Headaches are the most important symptom - debilitating and pretty much constant. This symptom is definitely improved. Her gait is better, fatigue is better, balance is better, and sensation is better. She is a long way from "fixed," but we are VERY excited and hopeful.

Improving for the first time in 8 years!! That is beautiful! I love reading along the usual discussions and coming across reports like this.
"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition
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