Any place in South FL for CCSVI test?

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby rssugg » Fri Aug 06, 2010 12:03 pm

Thats good news!! Thanks!
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Postby suzq77 » Fri Aug 06, 2010 12:23 pm

None of the doctors in Florida have IRB approval (except for maybe the one in WPB; not sure).

Somebody gave out my doctors name (in Florida; don't feel comfortable getting more specific) and now he's concerned that he'll be shut down because they're booked out 6 weeks.

If you'd like to find a doctor, visit this page and proceed to the doctor finder link:
http://www.sirweb.org/

You can search by state and then it lists alphabetically by city. This is how I found my IR - just emailed him some info and he responded immediately.

Be proactive and use this link - it works!
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Postby Nunzio » Fri Aug 06, 2010 3:02 pm

naychergirl wrote:
Nunzio wrote:I spoke today with the doctor in W. Palm Beach. He should be able to start operating again starting Sept 3 from a private outpatient catheterization center. Unfortunately he is not going to be able to accept insurance but the good news is that the cost should be half of what you would pay in Mexico or Poland. Let's keep our fingers crossed and I will let you know when the last details are worked out.


Nunzio,
I believe we are seeing the same doctor. I have an MRV next week, and it's covered by insurance. And my doppler was covered as well. So, I'm thinking my proceedure will be covered too. I'm going to call my insurance since sgriff gave us the codes, and find out for sure.

Naychergirl

Hi Naychergirl,
the problem is that when you do a procedure you have to associate that with a diagnose. If you say MS, that will not fly; if you say "vein stenosis" it might but that is a white lie; at least I think that is the reason, but please ask him and then report to us.
Good luck.
Everybody here brings happiness, somebody by coming,others by leaving.  PPMS since 2000<br />
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Postby FastBenz » Sun Aug 08, 2010 12:30 pm

bretzke wrote:My daughter's insurance has pre-approved both testing and treatment if necessary.

There's probably a good reason this doc can't accept insurance, but it raises a red flag for me.

Brian



If you talk to him , you will understand why. He was already shutdown at the hospital when the drug companies wrote a nice big check to the board of directors. They have potential to lose $7500 a month from all of us if we don't need their meds.
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Postby edife » Wed Feb 02, 2011 6:58 pm

Someone please send me info for Palm Beach ccsci doppler/diagnose. Here in St Lucie county they aren't trained and Clearwater's too far.

Copaxone for 3 yrs, Tysabri till 12/10 now back to Copaxone till Novantrone.

Thanks in advance
Ed
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