Any place in South FL for CCSVI test?

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Any place in South FL for CCSVI test?

Postby FastBenz » Tue Jun 08, 2010 5:44 am

Florida heat is kicking my butt. Was just looking to be tested at least. Then decide from there. My Neuro is great but really shot mentioning down and offered more meds. No thanks...
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Postby WeWillBeatMS » Wed Jul 07, 2010 11:48 am

I am looking for the same thing. My neurologist has agreed to write the prescription to go up to Georgetown University Hospital to get ultrasound tested with technicians and doctors who are supposedly trained in Zamboni's methodology. In the meantime I am waiting for a return phone call from Community Care in NY where they are actually doing the venogram and angioplasty from what I understand. I have been having a real rough past few months so I am actually going back on Tysabri even though I'm not too thrilled about it.
<div>WeWillBeatMS<br /><br /><br />Zamboni for President!</div>
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Postby FastBenz » Wed Jul 07, 2010 1:44 pm

somone PM'd me about CCSVI & treatment in West Palm Beach. But never heard back again from him.
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Postby rssugg » Thu Jul 08, 2010 8:22 am

^pm sent
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Postby FastBenz » Fri Jul 16, 2010 6:36 am

I have an appointment for July 26th next week in West Palm. They are only doing testing at the moment but hoping to start procedures again shortly.
The test is $431 and consult is $125-300. Soo glad this is local. I was headed to Toronto in a couple weeks on business and was going to try and attempt up there. :D
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Postby naychergirl » Fri Jul 16, 2010 7:28 am

I am with you Fast Benz! I PM'd you. I am scheduled to go to Poland in November, but I'd rather get tested closer to home. It's awefully expensive to fly to Poland.
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Postby naychergirl » Fri Jul 16, 2010 12:30 pm

FastBenz wrote:I have an appointment for July 26th next week in West Palm. They are only doing testing at the moment but hoping to start procedures again shortly.
The test is $431 and consult is $125-300. Soo glad this is local. I was headed to Toronto in a couple weeks on business and was going to try and attempt up there. :D


FastBenz- I too have an appointment on the 26th. At 2:30pm. And he's on my insurance, so I pay zip for the doppler! Yay! Let us know how your's goes, and I'll do the same.

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Postby WeWillBeatMS » Fri Jul 16, 2010 2:40 pm

I have waited for probably almost three months for a follow up call from the Community Care doctos in NY so I am seeking more local doctors again. I actually have an appointment with the WPB doctor on 7/22. First will be the ultrasound and then a consultation with the doctor. As far as I know they take my insurance as the nice lady that scheduled me over the phone asked me which kind I have and I told her and she said be sure to bring my card with me when I come in. I have also been in contact by email with an I.R. in Tampa who is working on getting a study approved real soon (like August) so if anyone is interested in that just PM me and I'll get you his name and contact info. Wow, you really have to be proactive with this CCSVI thing right?
<div>WeWillBeatMS<br /><br /><br />Zamboni for President!</div>
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Postby FastBenz » Wed Jul 28, 2010 5:48 am

Was tested yesterday in WPB. Found blockage in my right jugular. I am on the list for procedure and only 30 min from my house!
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Postby FastBenz » Wed Jul 28, 2010 5:49 am

Only had to pay my $50 copay as well. Now if I can get an MRV on my insurance.
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Postby naychergirl » Wed Jul 28, 2010 7:04 am

Hi FastBenz,
I was there (WPB) yesterday as well. I had no copay. Yay!

Found a blockage in my left juggular, and they suspect blockage in my azygos (or whatever they are called) veins, and some other vein I've never heard of. He suggestd to get an MRV, but only if my insurance covers it. Dr. said I would have to wait about a month or so to have the proceedure. I am soooooo excited!
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Postby FastBenz » Wed Jul 28, 2010 7:18 am

Same here.. I was there from about 1 till 3 pm yesterday. waiting for my call on my MRV
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Postby naychergirl » Wed Jul 28, 2010 8:09 am

My appointment was for 2:30pm. I didn't get out of there till after 6pm. They are supposed to call me with my MRV date. Good thing was my hubby took me out for BBQ for dinner!
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Postby FastBenz » Wed Jul 28, 2010 12:39 pm

too funny. I went to PA grill for some BBQ as well after that.. :lol:
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Postby naychergirl » Wed Jul 28, 2010 2:08 pm

Hilareous! That's where we went for dinner! I love PA BBQ!
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