Truncular Venous Malformation Facts- PAPER ONLINE NOW!!!!

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

more on TGA

Postby hwebb » Mon Jun 14, 2010 4:08 am

interestingly, it seems that some of the TGA/vascular papers on PubMed are written by neuros (and are 5-10 years old...long before the CCSVI furore).
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Postby HappyPoet » Tue Jun 15, 2010 8:21 am

Hi again hwebb,

Thanks for typing such a thoughtful reply.

Regarding TGA, please take a close look at all the diagnosing criteria, especially the length of attack (some of the criteria differ a bit depending upon the source).

Wishing you the best of everything,
~HappyPoet
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Postby JoyIsMyStrength » Tue Jun 15, 2010 12:47 pm

I have no idea if this has any bearing but...

- I sometimes have fairly severe amnesia. A few years ago my family drove from Florida to Virginia to visit relatives at Christmas for a week. Two months later we were sitting around talking and the trip came up. I had no idea what they were talking about. They had to recount the entire trip to me in detail. I still don't remember it to this day.

My husband is constantly saying, "Don't you remember me telling you that?" about one thing or another, and I honestly don't, yet I can code complex HTML by hand without a cheat sheet so I guess it's selective memory??

- The paper speaks of liver involvement to some degree but mostly "portal vein hypertension" which can be caused by cirrhosis or hepatitis, neither of which remotely apply to me. A recent abdominal x-ray and CT due to abdomen pain both showed no problems other than an enlarged liver. Don't mean to jump to conclusions, might be totally unrelated, it's just interesting.

- My MRV showed "Congenitally hypoplastic left transverse sinus, and jugular bulb." More details and image here:
http://www.thisisms.com/ftopict-12185.html

Pam
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bingo

Postby hwebb » Tue Jun 15, 2010 2:26 pm

Pam,
your MRV is very interesting to me. I have the same venous pattern as you (I also have an underformed azygos...but it is the jugular deformation which is interesting to people who suffer transient amnesia).

Happypoet - I did see that TGA is defined for people who have amnesia episodes which last < 24 hrs. However, my episodes of short-term memory problems are also transient. They last for 3 days in my case. So not stricly TGA...but similar.

hwebb
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to Pam

Postby hwebb » Tue Jun 15, 2010 2:36 pm

Pam,
please check your PM's.

best regards,
Helen
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