I'm so sorry to learn that your "most troubling" symptom is recurring temporary amnesia -- I hope you're finding ways to cope and handle the situation. I think I'm heading in that direction (right now it's hours lost rather than whole days lost) and was shocked to read your post, to learn that someone else with MS and CCSVI has this particular symptom, too.hwebb wrote:Every month or two I lose my short-term memory for about 3 days.
I'm also very sorry that you have to go back again for another attempt, but sometimes it does take more than one widening for a vein to withstand future recoil. Sounds like your doctor knows what's going on, so I will trust that you're in good hands... no, make that great hands! (I didn't even know there's a valve at that junction -- I never thought to ask.)So likely I have an incompetent valve issue. I'll have another balloon angioplasty at the end of the month.
It's so hard to know what might cause MS- and/or CCSVI-related memory loss, of which amnesia is the most extreme example... BBB breach, iron deposition, inflammation, demyelination, lesion formation, axonal loss, atrophy? OR, could memory loss somehow be due to the disrupted blood flow in the dural sinuses?I was concerned that these amnesia events may be related to demyelination - though they have increased since I commenced my anti-demyelination drug. And none of my "demyelination symptoms" (such as sensory changes, numb fingers etc) increase during these amnesia attacks.
hwebb wrote:My neuro is keen for me to use stronger immune-system control because of these regular episodes of cognitive impairment.
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