My CCSVI Liberation Venograms

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

My CCSVI Liberation Venograms

Postby Donnchadh » Wed Jun 09, 2010 3:13 pm

The following diagram shows the general arrangement of the major veins. Not to scale. Note where the azygous vein lays.

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Azygous vein "loop"

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going down...

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down...

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down...

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down. IR didn't find anything wrong with the azygous vein.

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"Mess" of collateral veins...which is the internal jugular vein?

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Starting to drain collateral veins.

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What the balloon looks like to the IR.

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Working on the stenosis.

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Mostly drained-but still some reduced vessel size?

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Left side "mess."

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Balloon inflating.

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draining, draining

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Done! The IR took 40 venograms.

Donnchadh
Last edited by Donnchadh on Wed Jun 09, 2010 3:53 pm, edited 3 times in total.
Kitty says, "Take that, you stenosis!"

Got MS?.....Get Liberated!
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Postby happy_canuck » Wed Jun 09, 2010 3:19 pm

Donnchadh

Thank you for the line drawing -- I hadn't seen that image before. Your scans are fascinating! I am amazed you wore your glasses, but then again, why not? I hope you got a chance to watch as they threaded the catheter. I'm going July 7th and hope they'll give me the same souvenirs!

Thanks,

~Sandra
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Postby Donnchadh » Wed Jun 09, 2010 4:04 pm

Be sure to ask them for the images before you leave Poland!

In the USA most radiologists use the .dicom file extension software for images. I needed to find and download a shareware program to open them up. The .dicom images were converted to standard .jpg file extensions; reduced images in size (for quicker downloading) and then uploaded to my hosting site.

Thought other MSer's would like to "see" what the veins look like; and what the inflated balloon looks like.

Donnchadh
Kitty says, "Take that, you stenosis!"

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Postby jr5646 » Wed Jun 09, 2010 6:30 pm

awesome images... Very cool... Thanks for sharing/posting..

How are you feeling after? I just recently had mrv that showed stenosis up high and flattened/elliptical/twisted with collaterial veins..

Thanks for the advice on the images... I'll ask for sure..

PS the glasses make a great reference point...
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Postby Donnchadh » Thu Jun 10, 2010 12:27 am

jr5646 wrote:awesome images... Very cool... Thanks for sharing/posting..

How are you feeling after? I just recently had mrv that showed stenosis up high and flattened/elliptical/twisted with collaterial veins..

Thanks for the advice on the images... I'll ask for sure..

PS the glasses make a great reference point...


While my internal jugular veins remained opened post-op, I was making dramatic improvements in my symptoms (per Dr. Zamboni's criteria, I would be classified SP MS). Unfortunately, these veins narrowed again 6 days after the procedure. I will have to re-do it again.

Donnchadh
Kitty says, "Take that, you stenosis!"

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Postby ikulo » Thu Jun 10, 2010 7:22 am

Cool pictures. And congrats on having the procedure done, even if it did end up reclosing, at least you know the problem!! good luck in the future.
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