Another post procedure video

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.
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L
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Another post procedure video

Post by L »



I am guessing that this video uploaded by kezzcass may have been posted before..
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Daisy3
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Post by Daisy3 »

I think she also needed to go back to hospital for some reason? Or I could be getting confused with someone else..
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Trine
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Post by Trine »

Here's her more, if not most, recent post, but it's more about the MS Walk in Australia and about getting the CCSVI word out. However, she does give a brief status after about 6 mins.

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1eye
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Post by 1eye »

Does anybody have a recent tally of people who have had this procedure? The neigh-sayers, are they flogging dead horses? Not in the market, myself.
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mshusband
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Post by mshusband »

There is no WAY to know an exact number but lets tally quickly.

Poland - 500+ people done by now
Kuwait - 150+ people done by now
Bulgaria - 50 people done by now
Canada - 2 people done now
USA - 100+ people done by now (Dake, Sclafani, Siskin other doctors unknown)
India - 25 people done by now
Australia - 50 people done by now

Costa Rica, Mexico, more Polish sites, UK and US sites all starting soon.

We'll be well over 1,000 people by the end of summer.
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mangio
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Post by mangio »

That number may even be higher. Here's the numbers we have:

Alphabetical:

America - 100 plus
Australia - 50 plus
Bahrain - 12
Belgium - data unknown
Bulgaria - 50 plus
Canada - 8
Costa Rica - 10 plus
Cuba - 6 plus
Egypt - 25 plus
England - data unknown
France - 5 plus
Germany - 60 - 100
Holland - 10 plus

ITALY - 130 plus
Ireland - 2 plus?
Jordan - 30 plus
Kuwait - 150
Mexico - commencing soon
Poland - 525 plus
Ameds Poland - 150 plus?
Portugal - commencing soon
Scotland - 1 - just started
Serbia - 20
Slovakia - 6

Updated and of course the numbers will be increasing daily.
Last edited by mangio on Tue Jun 15, 2010 11:41 am, edited 4 times in total.
ErikaSlovakia
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Post by ErikaSlovakia »

mangio wrote:That number may even be higher. Here's the numbers we have:


Slovakia - data unknown

This is what we have recorder but have no idea how accurate.

I really wish there was an official registry. I've possibly
the Barrie group will start an official database hope it's
true. It would be very powerful similar to Dr A. G. original
concept.
Patient number 6 was done yesterday in Slovakia. I was visiting the patient in hospital. She is SPMS, got 2 stents and angioplasty.
They continue. They just have too many other patients with heart and other vascular diseases.
Patient number 5 got 4 stents.
Erika
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
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mangio
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Post by mangio »

Thankyou for the correct info. I have changed the number for Slovakia.
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mangio
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Post by mangio »

updated procedure numbers
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