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Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

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PostPosted: Thu Jun 10, 2010 4:53 am 
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http://www.youtube.com/watch?v=sazvStho ... re=related

I am guessing that this video uploaded by kezzcass may have been posted before..
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Daisy3
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PostPosted: Thu Jun 10, 2010 5:44 am 
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I think she also needed to go back to hospital for some reason? Or I could be getting confused with someone else..
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Trine
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PostPosted: Thu Jun 10, 2010 6:35 am 
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Here's her more, if not most, recent post, but it's more about the MS Walk in Australia and about getting the CCSVI word out. However, she does give a brief status after about 6 mins.

http://www.youtube.com/watch?v=UNQzqY4L ... re=related
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1eye
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PostPosted: Thu Jun 10, 2010 7:12 am 
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Does anybody have a recent tally of people who have had this procedure? The neigh-sayers, are they flogging dead horses? Not in the market, myself.

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"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'MS' is over - if you want it
Patients sans/without patience
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mshusband
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PostPosted: Thu Jun 10, 2010 7:38 am 
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There is no WAY to know an exact number but lets tally quickly.

Poland - 500+ people done by now
Kuwait - 150+ people done by now
Bulgaria - 50 people done by now
Canada - 2 people done now
USA - 100+ people done by now (Dake, Sclafani, Siskin other doctors unknown)
India - 25 people done by now
Australia - 50 people done by now

Costa Rica, Mexico, more Polish sites, UK and US sites all starting soon.

We'll be well over 1,000 people by the end of summer.
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mangio
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PostPosted: Thu Jun 10, 2010 11:29 am 
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That number may even be higher. Here's the numbers we have:

Alphabetical:

America - 100 plus
Australia - 50 plus
Bahrain - 12
Belgium - data unknown
Bulgaria - 50 plus
Canada - 8
Costa Rica - 10 plus
Cuba - 6 plus
Egypt - 25 plus
England - data unknown
France - 5 plus
Germany - 60 - 100
Holland - 10 plus

ITALY - 130 plus
Ireland - 2 plus?
Jordan - 30 plus
Kuwait - 150
Mexico - commencing soon
Poland - 525 plus
Ameds Poland - 150 plus?
Portugal - commencing soon
Scotland - 1 - just started
Serbia - 20
Slovakia - 6

Updated and of course the numbers will be increasing daily.


Last edited by mangio on Tue Jun 15, 2010 12:41 pm, edited 4 times in total.

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ErikaSlovakia
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PostPosted: Thu Jun 10, 2010 11:45 am 
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Location: Slovakia, Europe
mangio wrote:
That number may even be higher. Here's the numbers we have:


Slovakia - data unknown

This is what we have recorder but have no idea how accurate.

I really wish there was an official registry. I've possibly
the Barrie group will start an official database hope it's
true. It would be very powerful similar to Dr A. G. original
concept.


Patient number 6 was done yesterday in Slovakia. I was visiting the patient in hospital. She is SPMS, got 2 stents and angioplasty.
They continue. They just have too many other patients with heart and other vascular diseases.
Patient number 5 got 4 stents.
Erika

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Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
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mangio
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PostPosted: Thu Jun 10, 2010 6:26 pm 
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Thankyou for the correct info. I have changed the number for Slovakia.
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mangio
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PostPosted: Tue Jun 15, 2010 12:48 pm 
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updated procedure numbers
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Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

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