This Is MS Multiple Sclerosis Community: Knowledge & Support

Welcome to the world's leading forum on Multiple Sclerosis research, support, and knowledge. For over 10 years, This is MS has provided an unbiased community dedicated to Multiple Sclerosis patients, caregivers, and affected loved ones.
It is currently Wed Jun 19, 2013 7:44 am


All times are UTC - 8 hours [ DST ]




Post new topic Reply to topic  [ 2 posts ] 
Author Message
PostPosted: Thu Jun 10, 2010 6:56 pm 
Offline
Family Elder
User avatar

Joined: Fri Jan 01, 2010 4:00 pm
Posts: 165
Location: Canada
I hope I am posting in the correct place. I am new to this. I have been diagnosed with RRMS for just over one year. I went to Seton Imaging in Buffalo Dec.2009. The results of my MRV show a 2 cm. stenosis of the LJV. The doppler is o.k. I had there radiologist look at this twice to confirm the diagnosis. I had a Interventional Neuroradiologist in a Toronto hospital look at all of the CD s from Seton and he said there was no blood flow problem. In May 2010 I went to the False Creek Clinic in Vancouver and had another MRV and Doppler Ultrasound done. The MRV is o.k. but the ultrasound shows a REFLUX problem. I am trying to get a Venogram done in the clinic in Albany, New York . This is suppose to be the Gold Standard to see whether I have CCSVI. I have spent thousands already between flying to Buffalo, Toronto, Vancouver, hotel accommodations and tests. What next......Has anybody else encountered these problems as well on there road to test for CCSVI.........


Top
 Profile  
 
PostPosted: Fri Jun 11, 2010 12:04 am 
Offline
Family Elder

Joined: Wed Jul 29, 2009 3:00 pm
Posts: 1099
Location: Slovakia, Europe
lovebug wrote:
I hope I am posting in the correct place. I am new to this. I have been diagnosed with RRMS for just over one year. I went to Seton Imaging in Buffalo Dec.2009. The results of my MRV show a 2 cm. stenosis of the LJV. The doppler is o.k. I had there radiologist look at this twice to confirm the diagnosis. I had a Interventional Neuroradiologist in a Toronto hospital look at all of the CD s from Seton and he said there was no blood flow problem. In May 2010 I went to the False Creek Clinic in Vancouver and had another MRV and Doppler Ultrasound done. The MRV is o.k. but the ultrasound shows a REFLUX problem. I am trying to get a Venogram done in the clinic in Albany, New York . This is suppose to be the Gold Standard to see whether I have CCSVI. I have spent thousands already between flying to Buffalo, Toronto, Vancouver, hotel accommodations and tests. What next......Has anybody else encountered these problems as well on there road to test for CCSVI.........

Hi lovebug!
Yes, this sounds like my story. To make it short I have got 1 stent in my left jugular vein. I have some improvements but something is exactly the same. They already do it in my country.
I am lucky it takes me only 8 hours by buses and trains to get to Poland.
I strongly, strongly hope they will start soon in Canada and US.
Erika

_________________
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse


Top
 Profile  
 
Display posts from previous:  Sort by  
Post new topic Reply to topic  [ 2 posts ] 

All times are UTC - 8 hours [ DST ]


Related topics
 Topics   Author   Replies   Views   Last post 
There are no new unread posts for this topic. Conflicting CCSVI Data

[ Go to pageGo to page: 1, 2, 3 ]

scorpion

31

3345

Fri Feb 18, 2011 9:45 pm

1eye View the latest post

There are no new unread posts for this topic. PLEASE DO NOT SEND RESULTS OF MRI TESTS TO DR. SCHELLING

Rici

0

352

Thu Mar 01, 2012 3:12 am

Rici View the latest post

There are no new unread posts for this topic. CCSVI TESTING / TESTS CCSVI *CANADA*

SickButHappy

2

2363

Fri Apr 30, 2010 9:48 am

eveable View the latest post

There are no new unread posts for this topic. Tests to Determine if CCSVI is present...

djlikwidsky

0

900

Thu Jan 14, 2010 5:34 am

djlikwidsky View the latest post

There are no new unread posts for this topic. UK people having CCSVI tests & procedures done abroad

Mutley

7

2477

Wed Nov 18, 2009 1:00 pm

gibbledygook View the latest post

 


Who is online

Users browsing this forum: vesta


You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum

Search for:
Jump to:  


News News Site map Site map SitemapIndex SitemapIndex RSS Feed RSS Feed Channel list Channel list
Read hundreds of personal Multiple Sclerosis stories on Experience Project. Experience Project is an anonymous community where people connect through their life experiences, made by the same people who built This is MS. With over 30 million personal stories about every possible life experience, you can quickly find people like you!


Interesting: Secret Confessions | Dream Meanings | Ask Questions, Get Answers

Advertise on the premier multiple sclerosis forum