I didn't have MS. I did have CCSVI. Now I have neither!

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

I didn't have MS. I did have CCSVI. Now I have neither!

Postby skincoll » Mon Jun 14, 2010 2:26 am

That's a pretty bold statement I know, but I believe it to be true.

I'm back from Poland (by rail and boat, in the end, with veins intact!) and although I'm not feeling miraculously cured, I do feel different inside, and I feel that this is the start of the healing process now - I don't think the procedure is an instant cure, at least not for me.

My body was being deprived by a lack of blood flow from my left jugular vein - now it's going to take a bit of time for the changes to filter through. Each organ, bone, vessel, vein and artery has to get acquainted with this new blood supply and pressure.

I'm finding that meditation and visualisation is providing some wonderful sensations of blood flowing, especially down the left jugular. I was becoming concerned because I still felt my MS symptoms, but the more I thought about it, the more unlikely I though it was that I would feel immediate relief from the procedure, no matter what others who went before me reported.

If nothing else came of last week, except the experience of meeting everyone else there for the procedure, it would have still been worth it. Although 'life affirming' is an overused description, I feel it is the best way to describe the feeling I have taken away after being with the rest of the w/b 7th June 'team'. This feeling will be an essential part of the healing process. I have never met so many kind and wonderful people in one go! Johnson is a very intelligent and interesting guy, whom I share an uncannily similar outlook - I could have talked with him all night, putting the world to rights in the Skybar, were it not for my girlfriend sensibly advising me to get some rest after the operation. Mtf is beautiful and funny, and all the other guys not on TIMS (at least as far as I'm aware), and their partners/families were amazing. I will be keeping in touch with all.

I've decided to spend the next 3 months or so away from this site, rather than report every little new bead of sweat on my palms on a daily basis, but I'll be back to report on the major changes I'm looking forward to over the coming weeks.

Wishing the best to all those in line to have the treatment, and to all others.


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Postby costumenastional » Mon Jun 14, 2010 2:51 am

My best of luck friend. Hope you ll come back in 3 months with some good news.
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Postby mtf » Mon Jun 14, 2010 3:02 am

And I will miss you!

"See you" in 3 months though,
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Postby JoyIsMyStrength » Mon Jun 14, 2010 5:24 am

But we LIKE hearing about your beads of sweat! LOL

Congratulations and best wishes to you as you mend day by day. Get some rest!

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