You are very eloquent and reflect my feelings on CCSVI.
Just one small semantic correction. CCSVI&MS should be called a hypothesis and not a theory. Richard Dawkins in his writings on evolution vs creation "theory" points out that a theory in science is considered "true" (what the heck does that mean, LOL). So CCSVI&MS is now just a hypothesis.
Also about the anger, the exuberance, the lawsuits and youtube videos : they scare me and make me want to divorce myself from this whole CCSVI movement. But yesterday my sister-in-law and I hosted MStery party number 11 for BNAC and raised well over $3000.00 !!! We are still getting checks so I think it will be about $3500.00.
And yes, the whole body of neurologists does not constitute the enemy. Plus the NMSS grants to sites who are trying to disprove CCSVI I believe is a good thing. That is what science is all about.
Hopeful10 wrote:patientx wrote:marcstck wrote: If your kitchen sink was backed up, but not affecting any other item in your kitchen, then only a plumber would be called. If that backed up sink overflowed and shorted out the electrical outlets in your kitchen, you'd need to call an electrician.
Hey, good (counter)analogy.
It is a good analogy, but not as a counter-analogy. If your sink overflowed and shorted out the electrical outlets, it's true that you'd need to call an electrician, but you'd only do so after the plummer diagnosed and fixed the problem with the sink. The plummer would need to take the lead, and only after he was done would the electrician be helpful.
Returning to the studies funded by the MS Societies, the vascular specialists should be leading or co-leading the studies. However, most of the studies are being led solely by neurologists.
All other reports are strictly anecdotal, and as such have little credence in the eyes of science.
Billmeik wrote:All other reports are strictly anecdotal, and as such have little credence in the eyes of science.
I think this is a little condescending to Simaka (95%) jordan (88%) Kuwait (92%) and several others. Im writing to you from Poland where My doctor wife and I backed off the 12mm stent, but I really can[t deny some improvements from angio. Drr Kostecki who I saw has seen 184 patints and found 84% stenosis, and in a healthy control group 14%..while there is a suprising shallow racism exhibited in the medical mind that blindness whouldnt be passed on to patients.
Really mark, you dont have to believe this in order for it to work. Just try it and quit mimicking the words of some wise but ultimately destructive neuro. Talk to me after and see if my attitude of 'do it just in case it's true' changes your thinking. Self evidence matters.
Metting patients before and after it is a calmed spasticity that really shows. Hands that no longer wobble, bladders that no longer scream, gaits that are calmer...don[t be afraid.
this shouldn't come as a surprise, but patients need to be keenly aware that the liberation procedure is not always the panacea that its most fervent advocates often assert it to be.
marcstck wrote:As far as Simka,, Jordan, and Kuwait go, they haven't published any papers detailing the results of their work.
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