Parliamentary debate re CCSVI
- Brightspot
- Family Elder
- Posts: 207
- Joined: Fri Jan 15, 2010 3:00 pm
- Location: Vancouver, Canada
Parliamentary debate re CCSVI
Right now there is a debate happening in the Canadian federal parliament.
(google CPAC to get live coverage)
We have heard the federal Health Minister and several other ministers quoting the MS Society regarding the need for further study prior to allowing persons with MS access to vascular medical care.
Clearly this Society has a lot of power over the lives of persons with MS.
I for one will be the government with the feedback that the MS Society does not represent me, and that I consider this society to be acting against the best interest of Canadians with MS.
SHAME ON THE MS SOCIETY FOR MISINFORMING OUR GOVERNMENT AND CAUSING HARM BY PREVENTING PERSONS WITH MS FROM OBTAINING VASCULAR MEDICAL SERVICES!!!
(google CPAC to get live coverage)
We have heard the federal Health Minister and several other ministers quoting the MS Society regarding the need for further study prior to allowing persons with MS access to vascular medical care.
Clearly this Society has a lot of power over the lives of persons with MS.
I for one will be the government with the feedback that the MS Society does not represent me, and that I consider this society to be acting against the best interest of Canadians with MS.
SHAME ON THE MS SOCIETY FOR MISINFORMING OUR GOVERNMENT AND CAUSING HARM BY PREVENTING PERSONS WITH MS FROM OBTAINING VASCULAR MEDICAL SERVICES!!!
- Villagemaid
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- Location: BC, Canada
- Contact:
- Villagemaid
- Family Elder
- Posts: 198
- Joined: Sun Mar 14, 2010 3:00 pm
- Location: BC, Canada
- Contact:
- NormB
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I believe the honorable Mauril Belanger representing Ottawa-Vanier was the most up to date and on the money with his presentation and responses beside Dr Duncan of course.
Let's see where this all will bring us. Holding our breath might turn us blue if you ask me since the Conservatives who are in power feel they're doing enough as it stands.
Take care all
Norm
Let's see where this all will bring us. Holding our breath might turn us blue if you ask me since the Conservatives who are in power feel they're doing enough as it stands.
Take care all
Norm
Last edited by NormB on Tue Jun 15, 2010 4:21 am, edited 1 time in total.
'92 diag RR - '05 SP
On LDN since Sept. 2012 with better quality of life.
On LDN since Sept. 2012 with better quality of life.
There was a lot of misinformation from the government side tonight, especially the parliamentary secretary - but this is a technical topic for them. Dr. Duncan was great through, from when I joined, I heard:
1. That CCSVI is the treatment and the disease? Corrected a couple of times.
2. That angioplasty on veins is brand new. Corrected twice. First with references to venoplasty outside the neck.
3. That venoplasty in the neck is new. Corrected.
The displeasure voiced in the house directed at the neurology community was heartening; especially Kirsty Duncan's call for Zamboni, CCSVI experts and vascular specialists to be in on the government meetings which are planned. One of the conservatives asked that neurologists put aside their egos. I'm glad Parliament was able to do this - and I really hope the flood gates finally crack.
It was all wonderful; and I can't wait to listen to the Zamboni presentation to the subcommittee tomorrow.
1. That CCSVI is the treatment and the disease? Corrected a couple of times.
2. That angioplasty on veins is brand new. Corrected twice. First with references to venoplasty outside the neck.
3. That venoplasty in the neck is new. Corrected.
The displeasure voiced in the house directed at the neurology community was heartening; especially Kirsty Duncan's call for Zamboni, CCSVI experts and vascular specialists to be in on the government meetings which are planned. One of the conservatives asked that neurologists put aside their egos. I'm glad Parliament was able to do this - and I really hope the flood gates finally crack.
It was all wonderful; and I can't wait to listen to the Zamboni presentation to the subcommittee tomorrow.
- Villagemaid
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- Location: BC, Canada
- Contact:
Flashhack,
It should ultimately be in the parlvu event centre. Just not loaded yet - night sittings of the house not that normal - but I would expect to see it here soon.
http://parlvu.parl.gc.ca/Parlvu/DayView.aspx
It should ultimately be in the parlvu event centre. Just not loaded yet - night sittings of the house not that normal - but I would expect to see it here soon.
http://parlvu.parl.gc.ca/Parlvu/DayView.aspx
- SilentNewfie
- Newbie
- Posts: 2
- Joined: Thu Jun 10, 2010 2:00 pm
http://parlvu.parl.gc.ca/Parlvu/Content ... ityId=6402
8 hours 10 minutes in is where it starts.
This is the link to the video.
8 hours 10 minutes in is where it starts.
This is the link to the video.
The parliamentary discussion about CCSVI of 15 June is being broadcasted live right now at:
http://parlvu.parl.gc.ca/Parlvu/Content ... ityId=6410
http://parlvu.parl.gc.ca/Parlvu/Content ... ityId=6410
I am sending her a special thankyou and roses. Her efforts are
beyond words. As for the child from the national office she
was buried and deservedly so.
I couldn't be more disappointed in the national stance. We in fact
received e-mail post broadcast
that individuals here in the west will be launching
their own new ms society (different name of course) with
very heavy focus on vascular connections and treatment.
We raised 7 million
dollars last week out west for ms society. That will be challenged
enormously in the months to come.
beyond words. As for the child from the national office she
was buried and deservedly so.
I couldn't be more disappointed in the national stance. We in fact
received e-mail post broadcast
that individuals here in the west will be launching
their own new ms society (different name of course) with
very heavy focus on vascular connections and treatment.
We raised 7 million
dollars last week out west for ms society. That will be challenged
enormously in the months to come.
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