Egypt-wheelchair-Won't treat?

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Egypt-wheelchair-Won't treat?

Postby thornyrose76 » Wed Jun 16, 2010 6:02 pm

Is it true that doctor's in Egypt won't perform the angioplasty on anyone who has MS and is in a wheelchair? :cry:
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Yes.

Postby BELOU » Thu Jun 17, 2010 4:39 am

Yes this is true. I talked to Sinan and he confirmed that they will not treat people in wheelchair.
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Postby Ali888 » Thu Jun 17, 2010 5:36 am

Egypt will not treat if you are bedridden or confined ro a wheelchair because they do not think there will be much benefit.
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Postby EnjoyingTheRide » Thu Jun 17, 2010 5:47 am

I can't help but chime in here, as a person with MS and CCSVI, who is in a wheelchair, and who was a CCSVI patient of Dr. Sclafani in March.

Sure, opening our veins won't get us up out of our wheelchairs, but it may stop further damage from occuring, so that we remain able to use wheelchairs in the future, rather than being bed ridden.

Come on Egypt. Don't write us off just because we can't make impressive before and after videos!
Mitch
Please visit my blog at www.enjoyingtheride.com
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Postby Shueywho » Thu Jun 17, 2010 8:04 am

I wonder if you are right about those before and after videos. Maybe they do only want the impressive results to boost business. I hope not, but....
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Postby thisisalex » Thu Jun 17, 2010 8:07 am

Ali888 wrote:Egypt will not treat if you are bedridden or confined ro a wheelchair because they do not think there will be much benefit.


WHAT?!?!?!
they surely dont understand the machanism of CCSVI or simply just want better marketing

both is painful
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Postby Sasani » Thu Jun 17, 2010 8:43 am

I have spoken to Dr. Sinan who says he will treat wheelchair people who can walk 20meters with a walker.


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Postby kc » Thu Jun 17, 2010 9:08 am

This has to be the most absurd thing I have ever heard. As far as marketing goes, someone with ccsvi in a wheelchair who gets liberated, and then doesn't need the wheelchair is DA BEST! We have seen pre post videos of this. I cannot remember her code name but the woman who was in the scooter who then was able to pick up her grandchild while standing.

Egypt be real.

kc
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Postby Trine » Thu Jun 17, 2010 9:13 am

Good thing there are many other locations now offering this treatment and are not discriminating. Besides, I haven't heard very many reports out of Egypt anyway.
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Postby Notdoneyet » Thu Jun 17, 2010 10:10 am

In defence of Dr Tareq Sinan's team, treating people in Egypt, I would like to say that things are not as easy for a disabled person in Egypt, as here. The clinic where we were tested, especially was not that conducive to a wheelchair, let alone a bed. I don't know for sure, but perhaps in Kuwait he is able to treat all cases of MS. :)

Colin
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Re: Egypt-wheelchair-Won't treat?

Postby Zjay » Mon Jun 28, 2010 9:22 pm

The people who are involved in the treatment must get focused so that things will e much easier and faster. The patient seemed to be hopeful that the day of his recovery will come at the SOONEST time. That will be done by the aid of these people.
Last edited by Zjay on Tue Jun 29, 2010 10:15 pm, edited 1 time in total.
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Postby thornyrose76 » Tue Jun 29, 2010 5:38 pm

I emailed him today but it came back to me. Has this happened to anyone else?
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Postby garyak » Tue Jun 29, 2010 7:56 pm

without a more valid reason - screw them . I am in a wheel chair and can't wait to see if I can have my progression slowed or stopped for how ever long. I will let everyone know how it helped me or not once my procedure is done-hopefully in next 3 months-either in Poland or San Diego.
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Postby L » Wed Jun 30, 2010 4:53 am

Notdoneyet wrote:In defence of Dr Tareq Sinan's team, treating people in Egypt, I would like to say that things are not as easy for a disabled person in Egypt, as here. The clinic where we were tested, especially was not that conducive to a wheelchair, let alone a bed. I don't know for sure, but perhaps in Kuwait he is able to treat all cases of MS. :)

Colin


It could be to do with accessibility, yes. Maybe the building is such that the insurance doesn't cover wheelchair-bound people or something like that?
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Postby pebbles2 » Mon Nov 15, 2010 8:40 am

Have you ever been to Egypt, it would be impossible to get into most of the old buildings there, it is so old....probably just not practical
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