This Is MS Multiple Sclerosis Community: Knowledge & Support

Ernst,

I'm so happy for your wife and your family. You've worked so hard to make this happen and now you've all gotten what you so rightfully deserve - relief!

Michelle

Today I checked the Material, 2 cd:s about Marja's operation in Poland. Lots of MRI photos from brain and blood-flow film clips. I made short videoclip. This video editing is something new for me.. but learning

http://www.youtube.com/watch?v=uMwWEsSouEQ

Even set to piano music, pretty impressive.

More impressive is that what seems like a collateral outlet in the "before" portion of the video is absent in the "after" portion. So there must be less resistance to flow (and less or no reflux) after the ballooning and/or stenting.

That is music to everyone's ears.

Thanks Ernst.

Excellent news that your wife got the procedure done! Hope the pain goes away quickly. There may also be headaches, and the sound of pounding blood flow in the ears, but this goes away as the body adjusts.

_________________
RRMS '96 SPMS '02 | Dual jugular vein stenosis (CCSVI) | 10/09 3 stents, 1 angioplasty. Details http://healingpowernow.com

Yes, the operation was fine and effects were incredible.. but lasted about 5 days, and then came herpes attack and necktension and lower energylevel came back. Now we wait a bit that virus attack is gone and then hopefully good effects comes back. Im sure that if jugular vein is still wide and functioning wife will be the same like after procedure. But, now she nows what it feels like to be liberated; more energy, no necktension, more power, and both bodysides working same way.

Time to update

Now, it's about 2 months checkpoint since procedure in Ameds, Poland. Let's say that first month was unstable period, with fantastic moments to no-improvement-periods.. but since then (this last month) it has been absolutely wonderful and stable. At this moment you could say honestly, that you (or I) can't see that my wife Marja has MS. She has been so high with energy, she is happier and funnier than before and she is interested about things nowadays. Now she is also active with exercise and having more fun with walks/jogging, cause her legs are'nt heavy anymore. We are so happy about results and I really hope that CCSVI procedures will be made in Finland too. Next friday local reporter is coming to meet us, and at least there will be our story to local newspaper.

Ernst, how wonderful! Congratulations to you both!

Pam

So happy for you and your wife. This is encouraging. Thank you for the update.

Thank you for the update. It is appreciated as information can become scant after a couple months. I imagine some are out living their lives to the fullest and are no longer stuck inside where the a/c and computer are. Some might be worried about posting negative, but we need it all. Thank You.

Sheila

Im gonna update wife's improvements and condition now and then, cause Its important info for people following CCSVI. And Im gonna tell things just the way they are, good and bads.. and last 30 days has been so good, or even betteri than I expected.. cause symptoms are gone (she was mild before op but had symptoms: fatigue, "heavy legs", minor motorical issues in right side, chronic neck pain, etc.).. But after operation I could see her symptoms even better. I don't think that "wow, now MS is gone and defeated", but now I know for sure that CCSVI is related to MS and symptoms. Now I have scientific info, anecdotal stories and my wife's experience --> I absolutely convinced about CCSVI now.

Ernst!!! ; that sound s so Coooooooooooooooool:-)) congrats and all the best for your wife and you!!
....I hope that my husband who will have his treatment in exactelky 2 weeks fromm now, will follow the same path as your wife!
best form germany
ines

Today I was most happy to read quite big article about my wife's condition after 25.june operation in Ameds. She was even in front page!!



You don't probably understand finnish, but freely translated "help from Poland to multiple sclerosis" and under the photo reads something like "Marja runs, cause she can. Before MS took away joy from training/moving"

And inside the newspaper, there was quite big article about her MS history, CCSVI, Poland, effects.. and treatment-is-not-in-Finland-yet.. But I know that there will be more media and more pressure, so finally this will be in Finland - hopefully soon. We have quite good professionals with veins, so we'll see..

The article (sorry, in finnish but there is nice photo of Marja and our 5yr old son):
LOCAL NEWSPAPER STORY 13.9.2010

Brilliant, Ernst.

I am happy for all three of you.

_________________
My name is not really Johnson. MSed up since 1993

Great news, glad to hear it!

Now over 7 months from procedure and Marja is doing so great. In fact, she is stronger than before her MS dx , cause last months we have done weight exercises. I made some reading about exercising muscles, and I was very convinced that exercise is very good thing with MS. Her symptoms have been gone, and that is so wonderful. She is going to Ameds next summer, to check the flow, but if have to bet - im sure the flow is good.